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What choices do I have? Seeking Advice.
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<blockquote data-quote="slsh" data-source="post: 695500" data-attributes="member: 8"><p>Hi Mama. I think your best bet at this point would be to start raising the alarm with your school district (which is required to fund educational services for your son), with your state mental health agency, with DCFS, and if necessary with your Dept of Juvenile Justice (and this is the order I would take them on). This really doesn't seem to fall under an "insurance" issue anymore - you need long term funding.</p><p></p><p>You have a medical report that has, in essence, identified him as a predator (right now). Additionally, they are recommending supervision 24/7 - no family can do that, and I guarantee no school will keep him supervised to that degree while he's on their property either. How will the school provide education in your home community while ensuring the safety of other students? Huge liability I would think. If they cannot educate him in his community, they have to pay not only educational portion of Residential Treatment Center (RTC) but also the residential part. </p><p></p><p>State Dept of mental health - what funding options are available for sexually aggressive children? There should be options, even in this day of lousy state budgets. Ditto DCFS - ditto Department of Juvenile Justice.</p><p></p><p>Any conversation you have with anyone in authority, I would confirm that conversation in writing, via certified letter. "Dear Ms. Dept of Mental Health, this is to confirm our conversation on July 1, 2016. I advised you of my son's needs of X, Y, and Z, and the recommendations of evaluation by (whomever) citing safety issues and need for 24/7 supervision. You advised me that in spite of the potential danger my son currently presents to our community, no funding was available." Or whatever. Share the wealth, so to speak, and create a paper trail.</p><p></p><p>Additionally - and this may have changed in the last 15 years, but it's definitely worth checking - when my son left for Residential Treatment Center (RTC), he was considered "independent" in terms of social security, meaning SSA no longer considered our income (he was 9 at the time). He started receiving disability payments, and by extension was eligible for Medicaid - which may or may not fund RTCs. I live in IL and at the time, we had a grant program for severely mentally ill kiddos so Medicaid was a moot issue for us. My understanding is that the grant is next to impossible to get anymore, but.... your son is not the first child with severe issues, and there is funding out there, somewhere.</p><p></p><p>Check with Special Education advocacy groups in your area - you can just ask about funding resources for Residential Treatment Center (RTC) if you don't want to get into specifics with everyone you come in contact with. Check with local federally mandated agency that handles child and adult special needs advocacy issues (the one in IL is Equip for Equality - their website may have links to other states' agencies). Even though I usually cringe when I have to deal with any state agency, IL has a Guardianship and Advocacy Commission that was exceptionally helpful when I've had to deal with issues for either of my 2 kiddos with disabilities - I'm thinking there's a similar dept in your state.</p><p></p><p>Basically you're going to have to get creative, determined, and even alarmist and a bit hysterical if it's called for - the goal is to find funding so that your son is able to continue treatment in an environment that is safe for him *and* for those living with him, and so that he is able to return to a less restrictive environment, *safely*, in the future.</p><p></p><p>Good luck, and don't give up. It can be incredibly frustrating, but.... someone, somewhere has the answer you need.</p><p></p><p>Edited to Add: Of course, the very <strong>FIRST</strong> people to talk to would be the folks at his current Residential Treatment Center (RTC). They may have a feel for what funding is out there. They may have more up-to-date information re: social security disability for him and/or Medicaid. They should know this stuff - but should and do are sometimes very far apart. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite2" alt=";)" title="Wink ;)" loading="lazy" data-shortname=";)" /> Good luck.</p></blockquote><p></p>
[QUOTE="slsh, post: 695500, member: 8"] Hi Mama. I think your best bet at this point would be to start raising the alarm with your school district (which is required to fund educational services for your son), with your state mental health agency, with DCFS, and if necessary with your Dept of Juvenile Justice (and this is the order I would take them on). This really doesn't seem to fall under an "insurance" issue anymore - you need long term funding. You have a medical report that has, in essence, identified him as a predator (right now). Additionally, they are recommending supervision 24/7 - no family can do that, and I guarantee no school will keep him supervised to that degree while he's on their property either. How will the school provide education in your home community while ensuring the safety of other students? Huge liability I would think. If they cannot educate him in his community, they have to pay not only educational portion of Residential Treatment Center (RTC) but also the residential part. State Dept of mental health - what funding options are available for sexually aggressive children? There should be options, even in this day of lousy state budgets. Ditto DCFS - ditto Department of Juvenile Justice. Any conversation you have with anyone in authority, I would confirm that conversation in writing, via certified letter. "Dear Ms. Dept of Mental Health, this is to confirm our conversation on July 1, 2016. I advised you of my son's needs of X, Y, and Z, and the recommendations of evaluation by (whomever) citing safety issues and need for 24/7 supervision. You advised me that in spite of the potential danger my son currently presents to our community, no funding was available." Or whatever. Share the wealth, so to speak, and create a paper trail. Additionally - and this may have changed in the last 15 years, but it's definitely worth checking - when my son left for Residential Treatment Center (RTC), he was considered "independent" in terms of social security, meaning SSA no longer considered our income (he was 9 at the time). He started receiving disability payments, and by extension was eligible for Medicaid - which may or may not fund RTCs. I live in IL and at the time, we had a grant program for severely mentally ill kiddos so Medicaid was a moot issue for us. My understanding is that the grant is next to impossible to get anymore, but.... your son is not the first child with severe issues, and there is funding out there, somewhere. Check with Special Education advocacy groups in your area - you can just ask about funding resources for Residential Treatment Center (RTC) if you don't want to get into specifics with everyone you come in contact with. Check with local federally mandated agency that handles child and adult special needs advocacy issues (the one in IL is Equip for Equality - their website may have links to other states' agencies). Even though I usually cringe when I have to deal with any state agency, IL has a Guardianship and Advocacy Commission that was exceptionally helpful when I've had to deal with issues for either of my 2 kiddos with disabilities - I'm thinking there's a similar dept in your state. Basically you're going to have to get creative, determined, and even alarmist and a bit hysterical if it's called for - the goal is to find funding so that your son is able to continue treatment in an environment that is safe for him *and* for those living with him, and so that he is able to return to a less restrictive environment, *safely*, in the future. Good luck, and don't give up. It can be incredibly frustrating, but.... someone, somewhere has the answer you need. Edited to Add: Of course, the very [B]FIRST[/B] people to talk to would be the folks at his current Residential Treatment Center (RTC). They may have a feel for what funding is out there. They may have more up-to-date information re: social security disability for him and/or Medicaid. They should know this stuff - but should and do are sometimes very far apart. ;) Good luck. [/QUOTE]
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