Hi Seeking Strength, thank you for your comment. If I become involved in her care again, I'm definitely looking into this more. there is one hospice in our county that is currently "housing" for those needing a few weeks of hospice care and at capacity. Since I am not "cooperating/assisting"...
Black gnat, I'm sorry that this is what you're going through. It seems you are aware of your strengths and what you are having a hard time with. That is a ray of light and your lighthouse to follow through this storm. Go on your trip and don't take any calls. I'm glad you found this community...
hi pacific ocean. I'm glad you found this site. I am new and have a 24yr old daughter with- bipolar, depression and anxiety. I found this site a safe haven. i send you positive energy.
Thank you community of strong parents for the support and sharing your history. I've been on auto pilot all day and meditating(trying to). The most difficult time is when I'm going to bed or I'm in a moment of transition/rest. The tears come without warning I'm rereading your words of...
Thank you jetsam Tanya M and "recoveringenabler for your supportive words. For a moment there I began to lose sight. Recoveringenabler, You pointed out the social worker's tactics/ strategies/ job and reminded me of the sw's own words that she'll find her a place to live - I'm most grateful for...
So my daughter had the hospice social worker (sw) call me to say she's not feeling well and doesn't have a safe place to be on the hospice pain medications. She wants to come home. I let the sw know that I couldn't allow her back in the house with-my minor kids. She said the only in-patient hospice in our...
Thank you for your words and points to consider, Susiestar. I haven't talked to the doctor (who had treated her for the past 3yrs until just recently) who certified her terminally ill. I learned of the prognosis from the Hospice representative who obtained the certification. In the past, her...
It's good to read you allowed time to socialize. That in itself is a step forward. I need to put that on our list of goals. I'm new and am gathering as much knowledge as I can. Sending you positive energy. Thanks for sharing.
McDonna Tanya and New Leaf, thank you for sharing your thoughts. Thank you for reminding me of my 2 younger children who do not have a voice in this. New Leaf, I believe your heart has ached like mine to think of the horrific degrading experiences that have happened to our daughters involving...
Though my daughter is terminally ill and has multiple real medical conditions, I've heard her tell others she has cancer which she doesn't have. I do believe it's attention seeking. It's also because her illnesses are less known than the infamous cancer diagnosis. I believe she claimed to have cancer...
thank you Lil. I am open to hear advice and to hear I guess for lack of a better word "reassurance " that I'm making the best decision possible. It was difficult to explain to close family that I am not able to meet my goals of keeping my 4 children safe under my roof w the decision needed to be...
Thankful for this community. So very grateful for being able to share. Those close to me aren't able to be supportive with- feedback for one reason or another I understand they may be grieving too or have no words. I don't see hospice as an "end of road" as some patients do come "off" hospice. And...
That is one "positive" statement/ commitment that I can tell her - that I want to be with her when she receives care. I want her to be able to say that her mom will try her best to come be w me, sit with- me if possible so she knows she doesn't have to be alone. Thanks "tandemdame
Yes, Hospice said they would follow her to provide services. We/she informed hospice that she homeless and they said they would just need to know where to go to provide her with care. Thank you for your words tandemdame
Yes, just given the prognosis last week w this last bout of illness and she states she No longer wants to seek curative care. She took me off of her dnr and living will documents last year and replaced me w a "party friend "
Homeless off and on over the past 2 years after leaving college for medical reasons, we and others take her in/back in due to her poor mental and physical health (bipolar, many physical conditions including kidney disease and neurological inflammation conditions). She became ill last week ...