sometimes other people do not have the first clue of the way the cycling can occur, or that the symptoms are not the same 24-7. THis is also true of other disorders that you cannot "see" My friend with ms would have times of difficulty (during which time she tended to stay home) and times where she did not do so badly- and she would be more out and about. Same with my RA and Lupus. People see me on good days be able to do things or the day after infusions and would comment how great I looked, and then they would see me on day before infusions or on days when I had to use walker or scooter and would be sorta weirded out and act like I was faking or something.
I guess they maybe expect that if you have a mentally disordered child the symptoms are up front in your face obvious (as in full blown psychotic rage) 24-7.
This also used to confuse our kids school people.
