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<blockquote data-quote="Lothlorien" data-source="post: 135249" data-attributes="member: 1024"><p><a href="http://digestive.niddk.nih.gov/ddiseases/pubs/porphyria/" target="_blank">http://digestive.niddk.nih.gov/ddiseases/pubs/porphyria/</a></p><p> </p><p>This is a link to an explanation of general Porphyria. I don't think they included a list of symptoms, because there are different types. My aunt has it. Certain foods and medications trigger it as well as hormones. As she is getting older and going through the stages of menopause, her triggers have become substantially less. Basically, if she eats or drinks one of the trigger foods/drinks/medications, she is in the bathroom and can actually pass out from evacuating everything in her body at once. It is related to a seizure disorder also (not exactly sure how, but an aura is usually felt just before she has an attack and she did have a seizure disorder as a child)</p><p> </p><p>Also, something to watch out for......Missy gets stomach pains just before a seizure. I believe that is the aura that she experiences. At this point, I don't think she has porphyria, but will be keeping a close eye on it and will be testing her in the years to come, as it is a highly genetic disorder and is commonly missed because most symptoms lead to seeking our other issues like irritable bowel.</p></blockquote><p></p>
[QUOTE="Lothlorien, post: 135249, member: 1024"] [URL]http://digestive.niddk.nih.gov/ddiseases/pubs/porphyria/[/URL] This is a link to an explanation of general Porphyria. I don't think they included a list of symptoms, because there are different types. My aunt has it. Certain foods and medications trigger it as well as hormones. As she is getting older and going through the stages of menopause, her triggers have become substantially less. Basically, if she eats or drinks one of the trigger foods/drinks/medications, she is in the bathroom and can actually pass out from evacuating everything in her body at once. It is related to a seizure disorder also (not exactly sure how, but an aura is usually felt just before she has an attack and she did have a seizure disorder as a child) Also, something to watch out for......Missy gets stomach pains just before a seizure. I believe that is the aura that she experiences. At this point, I don't think she has porphyria, but will be keeping a close eye on it and will be testing her in the years to come, as it is a highly genetic disorder and is commonly missed because most symptoms lead to seeking our other issues like irritable bowel. [/QUOTE]
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