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<blockquote data-quote="Lothlorien" data-source="post: 135250" data-attributes="member: 1024"><p>Oh, and I wanted to add that my aunt suffered with these problems early on and was labeled "sickly" and as she got older the problems worsened. She was hospitalized at one point, had intestinal surgery and was never diagnosed until a few years ago. Purple or orange urine is one of the major symtpoms and if that is not present, docs don't test for it. My aunt never had colorful urine, so it went undetected until she was in her fortys. She works at a major hospital and was discussing it with someone who had done his thesis on Porphyria and he knew exactly what it was.</p></blockquote><p></p>
[QUOTE="Lothlorien, post: 135250, member: 1024"] Oh, and I wanted to add that my aunt suffered with these problems early on and was labeled "sickly" and as she got older the problems worsened. She was hospitalized at one point, had intestinal surgery and was never diagnosed until a few years ago. Purple or orange urine is one of the major symtpoms and if that is not present, docs don't test for it. My aunt never had colorful urine, so it went undetected until she was in her fortys. She works at a major hospital and was discussing it with someone who had done his thesis on Porphyria and he knew exactly what it was. [/QUOTE]
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