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<blockquote data-quote="svengandhi" data-source="post: 740295" data-attributes="member: 3493"><p>My oldest son, now 28, was diagnosed with PANDAS by Dr. Susan Swedos at NIMH when he was 7. He was one of the first confirmed diagnoses of the syndrome. He had come down with strep and his entire personality changed in K. We had no idea what was going on with him but his K teacher found an article about Dr. Swedos and sent it to us. It took a year but I was able to get him in for an evaluation. They didn't accept him into the study because we lived too far away to come once a week. However, they told us to give him amoxicillin daily through the next winter, which we did. At the end of that school year, the ENT offered to remove his tonsils, which harbor strep. He got strep a lot less frequently after that, but whenever he had strep, the PANDAS symptoms, which in his case was Obsessive Compulsive Disorder (OCD) like, would return. He now is old enough to manage his own health but even now, he will sometimes start acting Obsessive Compulsive Disorder (OCD)'ish and when it's that far gone, he doesn't see it. I trained the other kids and his girlfriend to recognize it and tell him to get antibiotics. I will say that his formal diagnosis is mild Asperger's.</p><p></p><p>Based on what the OP is saying, PANDAS might be a viable cause. I saw a documentary recently about kids with undiagnosed pANDAS and their behavioral issues can be horrific. I am thankful every day that my son's K teacher saw the article and cared enough about my son to seek us out with this article - we had transferred him to a different school by that time. Severe cases are treated with gamma globulin infusion therapy or at least they were when we were investigating.</p><p></p><p>Please look into this option. Read up on it on the NIMH website.</p><p></p><p>Good luck.</p></blockquote><p></p>
[QUOTE="svengandhi, post: 740295, member: 3493"] My oldest son, now 28, was diagnosed with PANDAS by Dr. Susan Swedos at NIMH when he was 7. He was one of the first confirmed diagnoses of the syndrome. He had come down with strep and his entire personality changed in K. We had no idea what was going on with him but his K teacher found an article about Dr. Swedos and sent it to us. It took a year but I was able to get him in for an evaluation. They didn't accept him into the study because we lived too far away to come once a week. However, they told us to give him amoxicillin daily through the next winter, which we did. At the end of that school year, the ENT offered to remove his tonsils, which harbor strep. He got strep a lot less frequently after that, but whenever he had strep, the PANDAS symptoms, which in his case was Obsessive Compulsive Disorder (OCD) like, would return. He now is old enough to manage his own health but even now, he will sometimes start acting Obsessive Compulsive Disorder (OCD)'ish and when it's that far gone, he doesn't see it. I trained the other kids and his girlfriend to recognize it and tell him to get antibiotics. I will say that his formal diagnosis is mild Asperger's. Based on what the OP is saying, PANDAS might be a viable cause. I saw a documentary recently about kids with undiagnosed pANDAS and their behavioral issues can be horrific. I am thankful every day that my son's K teacher saw the article and cared enough about my son to seek us out with this article - we had transferred him to a different school by that time. Severe cases are treated with gamma globulin infusion therapy or at least they were when we were investigating. Please look into this option. Read up on it on the NIMH website. Good luck. [/QUOTE]
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