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Back on Intuniv - sick of the rages
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<blockquote data-quote="dee55" data-source="post: 400359" data-attributes="member: 10924"><p>Hi, im new here just came across your post and thought I'd share. My ten yr old son has ADD, anxiety, ODD. We have done it all over the past couple of years. neuropsychologist evaluations, neurofeedback, and over the past year we have gone to a biomedical doctor and had a lot of food allergy tests run, OAT test, amino acid tests. We found he has an intolerance to dairy and wheat. So he's on a girlfriend/CF diet. He isn't metabolizing protein well so his amino acids levels are way low. Which means he doesn't produce the chemicals that make him feel good etc.That's what his doctor told us and it makes sense. Besides he's pale and skinny and weak, I believe it. So we knew what vitamins and minerals he lacked, and we give it to him daily. That combined with diet didn't seem to help his behavior. Never mind all the consequence/reward programs we implemented in the home. His grades at school are great, it's mainly the rages that effect the family. I keep saying the same thing every time it happens. That I CANNOT TAKE it anymore and it HAS to stop. It's aweful. It's funny because he does seem totally fine after he flips out, almost like it's a release. Last summer we started medications. First with a stimulant ... they did not work. His anxiety levels went way up, he tends to hyper focus so you can imagine what that did to him. We then tried Intuniv which actually did help tremendously. He's on 3 mg but we are in the process of reducing back to 2mg because hes exhausted all the time and it's been over a month, it's just too much. The doctor wanted to try another stimulant with the intuniv because i guess its works for a lot of kids. But again... his anxiety level went way up. We figure, he does well in school, and is okay otherwise, it's just these rages, so that's the focus. We are staying on intuniv for now and starting talk therapy and will try to work on alternative ways to handle anger, and maybe focus more on figuring why raging is his coping mechanism for stress etc and how we can come up with another way of coping. His rages have reduced a lot but there are still some. He has also replaced rages with a lesser reaction of yelling and screaming for a bit, but they are shorter lived and not as destructive. Still not acceptable behavior by any means because I find myself losing it with these. It's just ridiculous. He can get aggressive and posture at us which is a slippery slope, so we are still struggling, but a little more hopeful. It stinks, because I feel like I'm in a race with time to help solve these issues before he's to old and doesn't listen to us or starts doing drugs etc. The worry! I know we are doing all we can though, and that's all you can do. It sounds like you are to, good luck and I hope this helps.</p></blockquote><p></p>
[QUOTE="dee55, post: 400359, member: 10924"] Hi, im new here just came across your post and thought I'd share. My ten yr old son has ADD, anxiety, ODD. We have done it all over the past couple of years. neuropsychologist evaluations, neurofeedback, and over the past year we have gone to a biomedical doctor and had a lot of food allergy tests run, OAT test, amino acid tests. We found he has an intolerance to dairy and wheat. So he's on a girlfriend/CF diet. He isn't metabolizing protein well so his amino acids levels are way low. Which means he doesn't produce the chemicals that make him feel good etc.That's what his doctor told us and it makes sense. Besides he's pale and skinny and weak, I believe it. So we knew what vitamins and minerals he lacked, and we give it to him daily. That combined with diet didn't seem to help his behavior. Never mind all the consequence/reward programs we implemented in the home. His grades at school are great, it's mainly the rages that effect the family. I keep saying the same thing every time it happens. That I CANNOT TAKE it anymore and it HAS to stop. It's aweful. It's funny because he does seem totally fine after he flips out, almost like it's a release. Last summer we started medications. First with a stimulant ... they did not work. His anxiety levels went way up, he tends to hyper focus so you can imagine what that did to him. We then tried Intuniv which actually did help tremendously. He's on 3 mg but we are in the process of reducing back to 2mg because hes exhausted all the time and it's been over a month, it's just too much. The doctor wanted to try another stimulant with the intuniv because i guess its works for a lot of kids. But again... his anxiety level went way up. We figure, he does well in school, and is okay otherwise, it's just these rages, so that's the focus. We are staying on intuniv for now and starting talk therapy and will try to work on alternative ways to handle anger, and maybe focus more on figuring why raging is his coping mechanism for stress etc and how we can come up with another way of coping. His rages have reduced a lot but there are still some. He has also replaced rages with a lesser reaction of yelling and screaming for a bit, but they are shorter lived and not as destructive. Still not acceptable behavior by any means because I find myself losing it with these. It's just ridiculous. He can get aggressive and posture at us which is a slippery slope, so we are still struggling, but a little more hopeful. It stinks, because I feel like I'm in a race with time to help solve these issues before he's to old and doesn't listen to us or starts doing drugs etc. The worry! I know we are doing all we can though, and that's all you can do. It sounds like you are to, good luck and I hope this helps. [/QUOTE]
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