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Could it really be this simple?
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<blockquote data-quote="Josie" data-source="post: 235431" data-attributes="member: 1792"><p>I know you don't want to do long term antibiotics. However, the Lyme doctors that I have seen believe CFS and fibro are mostly caused by Lyme Disease. One of them started as a CFS specialist. When he tested his CFS patients with a more sensitive Lyme test, over 90&#37; of them were positive. </p><p> </p><p>CFS and fibro, from what I understand, are really just a collection of symptoms with no known cause. If it is bacterial, there is hope of improvement on antibiotics.</p><p> </p><p>Lyme is not a good diagnosis but there is hope. </p><p> </p><p>The Lyme tests are not accurate. The mainstream doctors will tell you there is a high false postive rate, while the Lyme doctors will say there is a high false negative rate. If the Lyme doctors are right, that would explain your lack of findings with blood work. Even the CDC says that Lyme is a clinical diagnosis.</p><p> </p><p>I have a few Lyme symptoms, myself. I have joint pain, muscle twitching, and shortness of breath. I had a positive Lyme test and when I take antibiotics, my joint pain and air hunger go away. My muscle twitches are almost gone. My leg muscles used to twitch almost constantly. My Lyme doctor said I was probably 10 years away from being really sick if I hadn't known. Who knows if that is really true but I am definitely better on antibiotics than not. </p><p> </p><p>FWIW, the celiac boards believe celiac disease is a cause of fibro and CFS. When I went on the girlfriend diet, I no longer needed a nap or an early bed time. Again, the celiac tests are not very accurate. They might be accurate by the definition of celiac disease but they do not detect illness caused by gluten very well. Probably at least half of the people in my local celiac support group figured it out on their own. Celiac disease is a better answer than Lyme Disease and you can try it on your own, without a doctor, pretty easily.</p></blockquote><p></p>
[QUOTE="Josie, post: 235431, member: 1792"] I know you don't want to do long term antibiotics. However, the Lyme doctors that I have seen believe CFS and fibro are mostly caused by Lyme Disease. One of them started as a CFS specialist. When he tested his CFS patients with a more sensitive Lyme test, over 90% of them were positive. CFS and fibro, from what I understand, are really just a collection of symptoms with no known cause. If it is bacterial, there is hope of improvement on antibiotics. Lyme is not a good diagnosis but there is hope. The Lyme tests are not accurate. The mainstream doctors will tell you there is a high false postive rate, while the Lyme doctors will say there is a high false negative rate. If the Lyme doctors are right, that would explain your lack of findings with blood work. Even the CDC says that Lyme is a clinical diagnosis. I have a few Lyme symptoms, myself. I have joint pain, muscle twitching, and shortness of breath. I had a positive Lyme test and when I take antibiotics, my joint pain and air hunger go away. My muscle twitches are almost gone. My leg muscles used to twitch almost constantly. My Lyme doctor said I was probably 10 years away from being really sick if I hadn't known. Who knows if that is really true but I am definitely better on antibiotics than not. FWIW, the celiac boards believe celiac disease is a cause of fibro and CFS. When I went on the girlfriend diet, I no longer needed a nap or an early bed time. Again, the celiac tests are not very accurate. They might be accurate by the definition of celiac disease but they do not detect illness caused by gluten very well. Probably at least half of the people in my local celiac support group figured it out on their own. Celiac disease is a better answer than Lyme Disease and you can try it on your own, without a doctor, pretty easily. [/QUOTE]
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