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Drug rashes and mood stabilizers...
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<blockquote data-quote="gcvmom" data-source="post: 191555" data-attributes="member: 3444"><p>L'sMP -- he had a small (grape-sized) cavernous hemangioma removed from his right temporal lobe. It's essentially a cluster of leaky blood vessels that form a "cavern" of scar tissue after they leak. He had an MRI in '04 because he passed out while driving (apparently it was a seizure -- he'd been having these weird dizzy spells for a couple of years). No one caught the cavernoma at that time. It was there, but whomever reviewed his films missed it. We saw the new neuro in '07 because his "spells" kept happening and were increasing in frequency and severity. The neuro noticed the abnormality in his old films and ordered a new study, which revealed that the cavernoma had more than tripled in size. They recommended removing it because he was symptomatic and because it had changed so dramatically in size in a relatively short period of time. It had the potential of causing more significant damage if it was allowed to remain and possible grow larger.</p><p> </p><p>His surgery was this past February, and it went off just fine (except for a problem with pain management after discharge which landed him back in the hospital). The only problem is that the surgeon found ANOTHER one of these things, but very small (rice-sized), in his pre-op and post-op films. He's been having breakthrough seizures since surgery, but I keep telling him he never got to the full dosage level of Lamictal that the neuro initially rx'd for him (because of side effects like insomnia and sweating).</p><p> </p><p>He STILL hasn't gone in for his post-op EEG and MRI -- which was supposed to happen in... ummm... APRIL!!! But he did finally contact the surgeon's office this week and they're working on his appointments <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /></p><p> </p><p>Did your daughter's surgery resolve the seizures? How is she doing on Keppra? We were told there was no guarantee his seizures would stop since the surgery itself causes scar tissue and irritation. We just figured he'd control it with medications. And his seizures are more an annoyance than anything incapacitating. We were more worried about damage that would result in permanent memory loss if left untreated.</p></blockquote><p></p>
[QUOTE="gcvmom, post: 191555, member: 3444"] L'sMP -- he had a small (grape-sized) cavernous hemangioma removed from his right temporal lobe. It's essentially a cluster of leaky blood vessels that form a "cavern" of scar tissue after they leak. He had an MRI in '04 because he passed out while driving (apparently it was a seizure -- he'd been having these weird dizzy spells for a couple of years). No one caught the cavernoma at that time. It was there, but whomever reviewed his films missed it. We saw the new neuro in '07 because his "spells" kept happening and were increasing in frequency and severity. The neuro noticed the abnormality in his old films and ordered a new study, which revealed that the cavernoma had more than tripled in size. They recommended removing it because he was symptomatic and because it had changed so dramatically in size in a relatively short period of time. It had the potential of causing more significant damage if it was allowed to remain and possible grow larger. His surgery was this past February, and it went off just fine (except for a problem with pain management after discharge which landed him back in the hospital). The only problem is that the surgeon found ANOTHER one of these things, but very small (rice-sized), in his pre-op and post-op films. He's been having breakthrough seizures since surgery, but I keep telling him he never got to the full dosage level of Lamictal that the neuro initially rx'd for him (because of side effects like insomnia and sweating). He STILL hasn't gone in for his post-op EEG and MRI -- which was supposed to happen in... ummm... APRIL!!! But he did finally contact the surgeon's office this week and they're working on his appointments :) Did your daughter's surgery resolve the seizures? How is she doing on Keppra? We were told there was no guarantee his seizures would stop since the surgery itself causes scar tissue and irritation. We just figured he'd control it with medications. And his seizures are more an annoyance than anything incapacitating. We were more worried about damage that would result in permanent memory loss if left untreated. [/QUOTE]
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