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He's being released - good news. But all I can do is cry
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<blockquote data-quote="seriously" data-source="post: 432572" data-attributes="member: 11920"><p>The problem, as I am sure many of you know, is that difficult child 2 is ultra rapid cycling. So am I so I have some clue what this means.</p><p></p><p>In practical terms, what it means is that, regardless of how bad he feels right now, it probably won't last more than a couple of days. It was part of the reason I elected to try to handle him at home for 5 days before we admitted him last Sunday.</p><p></p><p>There are some issues - like the fact that home is very triggering for him right now - that are making him more unstable than he might be otherwise. The support and help we were expecting to get from the "wrap around" program has yet to materialize in any substantial way and I am very frustrated about that. But I can't do anything to make it move faster so I will just have to sit on my hands for now. Plus it looks like some of the services we could really use (and I was led to believe we would get) are not available through this program. They made a big deal about having peer mentors to work with the kids on social skills and pro-social activities. They have 2 peer mentors for 98 kids. That would explain why we have only seen the peer mentor once in 4 weeks.</p><p></p><p>He's only been on the Depakote for 6 days so it is way too soon to know to what extent that is going to help. The Geodon has made a big difference but I think it's pooping out some and going up on the dose only gets him sedated without really helping the mood symptoms. The wrap around program wants us to have their psychiatrist handle his care so I don't know what medication changes that person may want to make. I was less than thrilled to have his current psychiatrist tell me yesterday that this other psychiatrist is a good doctor but that I probably wasn't going to get along with him. Ugh. I'm guessing that means he's a "take charge" kind of guy who thinks parents should just shut up and do what they're told. Goody.</p><p></p><p>We are scheduled for the intake appointment for a new neuropsychologist assessment in mid-June. Had to postpone it because he was in the hospital. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite3" alt=":(" title="Frown :(" loading="lazy" data-shortname=":(" /></p><p></p><p>I am giving them all his records on DVD. Spent about a day scanning everything into searchable Adobe PDF format that wasn't already in Word. It will make things so much easier for me. </p><p></p><p>I couldn't believe I had to explain to the psychologist that she could just put it in her computer and look at any/all the records she wanted to and print anything she thought was important. Otherwise I was going to have to spend $40 on copying and she would have gotten a 4" binder of records to wade through. </p><p></p><p>She was like "you can do that???" I guess she's a "people" person.<img src="/community/styles/default/xenforo/smilies/surprise.png" class="smilie" loading="lazy" alt=":surprise:" title="surprise :surprise:" data-shortname=":surprise:" /></p><p></p><p>He slept pretty well last night but was a handful all afternoon and evening. Broke one of the legs on the couch last night and he is badgering us to take him on a road trip so he can be in the car and just "go". This is mania and boredom at work and concerns me but we are super poor right now and can't afford to do much of anything with gas at $4 a gallon. Plus I suspect that nothing is going to satisfy him right now.</p><p></p><p>Just have to live through it and hope we all come out the other end OK.</p></blockquote><p></p>
[QUOTE="seriously, post: 432572, member: 11920"] The problem, as I am sure many of you know, is that difficult child 2 is ultra rapid cycling. So am I so I have some clue what this means. In practical terms, what it means is that, regardless of how bad he feels right now, it probably won't last more than a couple of days. It was part of the reason I elected to try to handle him at home for 5 days before we admitted him last Sunday. There are some issues - like the fact that home is very triggering for him right now - that are making him more unstable than he might be otherwise. The support and help we were expecting to get from the "wrap around" program has yet to materialize in any substantial way and I am very frustrated about that. But I can't do anything to make it move faster so I will just have to sit on my hands for now. Plus it looks like some of the services we could really use (and I was led to believe we would get) are not available through this program. They made a big deal about having peer mentors to work with the kids on social skills and pro-social activities. They have 2 peer mentors for 98 kids. That would explain why we have only seen the peer mentor once in 4 weeks. He's only been on the Depakote for 6 days so it is way too soon to know to what extent that is going to help. The Geodon has made a big difference but I think it's pooping out some and going up on the dose only gets him sedated without really helping the mood symptoms. The wrap around program wants us to have their psychiatrist handle his care so I don't know what medication changes that person may want to make. I was less than thrilled to have his current psychiatrist tell me yesterday that this other psychiatrist is a good doctor but that I probably wasn't going to get along with him. Ugh. I'm guessing that means he's a "take charge" kind of guy who thinks parents should just shut up and do what they're told. Goody. We are scheduled for the intake appointment for a new neuropsychologist assessment in mid-June. Had to postpone it because he was in the hospital. :( I am giving them all his records on DVD. Spent about a day scanning everything into searchable Adobe PDF format that wasn't already in Word. It will make things so much easier for me. I couldn't believe I had to explain to the psychologist that she could just put it in her computer and look at any/all the records she wanted to and print anything she thought was important. Otherwise I was going to have to spend $40 on copying and she would have gotten a 4" binder of records to wade through. She was like "you can do that???" I guess she's a "people" person.:surprise: He slept pretty well last night but was a handful all afternoon and evening. Broke one of the legs on the couch last night and he is badgering us to take him on a road trip so he can be in the car and just "go". This is mania and boredom at work and concerns me but we are super poor right now and can't afford to do much of anything with gas at $4 a gallon. Plus I suspect that nothing is going to satisfy him right now. Just have to live through it and hope we all come out the other end OK. [/QUOTE]
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He's being released - good news. But all I can do is cry
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