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<blockquote data-source="post: 2767"><p>I'm thinking, I'm thinking. I'm not sure what to do about an HMO, I have done my best to stay away from them.</p><p> </p><p>I know the Autism logo is confusing, but if you look at their NIDS emblem it also lists,Pervasive Developmental Disorder (PDD),Attention Deficit,Hyperactivity,learning disorders,language disorders and chronic fatigue syndrome. There was discussion on whether to change the name or have it become MAT for NIDS.</p><p> </p><p>The reason it started out as MAT is because most of the focus was originally on autism and unfortunately only the autism groups were recognizing this as a disease. The fact is that these kids with NIDS do not have autism or ADHD or whatever you want to call them but these are the names that people recognize. If you start looking at the autism or CFS symptoms you can see how much overlap in symptoms they have. My son doesn't have autism either.</p><p> </p><p>I tried the counseling route several times. The things they told me to do sounded really great in theory, but when my son was way out there in left field, forget it. All it was successful in doing was emptying my pocketbook.</p><p> </p><p>Our pediatrician is doing the treatment. He works at calming down the immune system and helping the brain work normally, not trying to control the brain or behavior. I did try working through a psyc. doctor. last year who was an expert in neuropharmacology, who was aware of the immune connection. He felt if you fixed what was wrong in the brain then the immune system would correct itself. It seemed to work at first, although we tried about 20 different medications, to find what would work. What I liked about him is that if there was any negative reaction he supplied you with an antidote. So at least you didn't have to deal with a child going beserk. In the long run that made my son alot worse. The one plus about that is that the school psyc. who still had a hard time accepting the immune connection, after reading a letter from psychiatrist saying that my son had an autoimmune problem that affected his moods,etc said now that makes sense. It didn't seem to make sense when two previous M.D.s said the same type of thing. Go figure that one. I guess because it was from one of his own kind.</p><p> </p><p>Gosh, what to tell you. Maybe we can hope that one of the drawing stations for the immune profiling study will be close enough to you. If I can think of something later I'll let you know.</p><p>Cheryl</p><p>10yo difficult child/almost easy child with NIDS</p></blockquote><p></p>
[QUOTE=", post: 2767"] I'm thinking, I'm thinking. I'm not sure what to do about an HMO, I have done my best to stay away from them. I know the Autism logo is confusing, but if you look at their NIDS emblem it also lists,Pervasive Developmental Disorder (PDD),Attention Deficit,Hyperactivity,learning disorders,language disorders and chronic fatigue syndrome. There was discussion on whether to change the name or have it become MAT for NIDS. The reason it started out as MAT is because most of the focus was originally on autism and unfortunately only the autism groups were recognizing this as a disease. The fact is that these kids with NIDS do not have autism or ADHD or whatever you want to call them but these are the names that people recognize. If you start looking at the autism or CFS symptoms you can see how much overlap in symptoms they have. My son doesn't have autism either. I tried the counseling route several times. The things they told me to do sounded really great in theory, but when my son was way out there in left field, forget it. All it was successful in doing was emptying my pocketbook. Our pediatrician is doing the treatment. He works at calming down the immune system and helping the brain work normally, not trying to control the brain or behavior. I did try working through a psyc. doctor. last year who was an expert in neuropharmacology, who was aware of the immune connection. He felt if you fixed what was wrong in the brain then the immune system would correct itself. It seemed to work at first, although we tried about 20 different medications, to find what would work. What I liked about him is that if there was any negative reaction he supplied you with an antidote. So at least you didn't have to deal with a child going beserk. In the long run that made my son alot worse. The one plus about that is that the school psyc. who still had a hard time accepting the immune connection, after reading a letter from psychiatrist saying that my son had an autoimmune problem that affected his moods,etc said now that makes sense. It didn't seem to make sense when two previous M.D.s said the same type of thing. Go figure that one. I guess because it was from one of his own kind. Gosh, what to tell you. Maybe we can hope that one of the drawing stations for the immune profiling study will be close enough to you. If I can think of something later I'll let you know. Cheryl 10yo difficult child/almost easy child with NIDS [/QUOTE]
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