Pam R
New Member
Repost from Main Board:
DS started his neuropsyche testing in September 2004. He is very resistant to testing. It took his doctor until March of 2005, doing weekly testing (and retesting the ones he blew off) to finish it with something resembling where he actually was.
Fast forward to now. We are starting the IEP process to get him where he can get extended services after 18 and adult services after that.
The school wanted the testing done over, as it was over 3 years since it was started. The doctor said only some of it needed to be done, as some would not change, i.e. IQ, etc. She agreed to do the bits that might change.
We did not want the school doing it for several reasons:
1. His resistance
2. The doctor's persistance in getting true results
3. DS's intense dislike of the school psyche person
4. Our bad history with the school
5. The school decidedly does NOT have DS's best interests at heart
So the school at the first meeting rejected the original report with-o even seeing what was in it. They wanted the testing done over. I expressed that the doctor felt just some parts needed redone. They agreed to that.
That was in early September. I've been after the doctor to get authorization and start the testing. The school has completed the Occupational Therapist (OT), academic assessment, and speech & language. (DS did blow off the academic but seems to have co-operated on the other 2.)
I finally confronted the doctor about when testing would start. She's not even put in for authorization, having decided NONE of the testing needed to be done.
So I told the school. They said they would NOW look at the old testing and decide. I sent them the old testing and they say they will accept that, as while it's older than 3 years at the start, it was not finished in over 3 years, just over 2 yrs old.
I told my advocate about this and she feels that new testing SHOULD be done, by the school if necessary. She does know why we did not want the school to do it.
My question:
What do any of you know about the testing, time periods, and the pluses and minuses of doing vs. not doing the testing over?
As far as I can tell, not much has changed with DS. The ODD stuff is much less, as long as he's stable on the food program. But it comes roaring back at the first wobble. Other than that, he's much the same as he's always been.
I don't know where to stand in the advocate vs. doctor thing. I think I need to know more, but have no idea what that should be. I have until early January, when the next meeting is, to find out.
Thanks for any help or info.
Pam R.
DS started his neuropsyche testing in September 2004. He is very resistant to testing. It took his doctor until March of 2005, doing weekly testing (and retesting the ones he blew off) to finish it with something resembling where he actually was.
Fast forward to now. We are starting the IEP process to get him where he can get extended services after 18 and adult services after that.
The school wanted the testing done over, as it was over 3 years since it was started. The doctor said only some of it needed to be done, as some would not change, i.e. IQ, etc. She agreed to do the bits that might change.
We did not want the school doing it for several reasons:
1. His resistance
2. The doctor's persistance in getting true results
3. DS's intense dislike of the school psyche person
4. Our bad history with the school
5. The school decidedly does NOT have DS's best interests at heart
So the school at the first meeting rejected the original report with-o even seeing what was in it. They wanted the testing done over. I expressed that the doctor felt just some parts needed redone. They agreed to that.
That was in early September. I've been after the doctor to get authorization and start the testing. The school has completed the Occupational Therapist (OT), academic assessment, and speech & language. (DS did blow off the academic but seems to have co-operated on the other 2.)
I finally confronted the doctor about when testing would start. She's not even put in for authorization, having decided NONE of the testing needed to be done.
So I told the school. They said they would NOW look at the old testing and decide. I sent them the old testing and they say they will accept that, as while it's older than 3 years at the start, it was not finished in over 3 years, just over 2 yrs old.
I told my advocate about this and she feels that new testing SHOULD be done, by the school if necessary. She does know why we did not want the school to do it.
My question:
What do any of you know about the testing, time periods, and the pluses and minuses of doing vs. not doing the testing over?
As far as I can tell, not much has changed with DS. The ODD stuff is much less, as long as he's stable on the food program. But it comes roaring back at the first wobble. Other than that, he's much the same as he's always been.
I don't know where to stand in the advocate vs. doctor thing. I think I need to know more, but have no idea what that should be. I have until early January, when the next meeting is, to find out.
Thanks for any help or info.
Pam R.