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<blockquote data-quote="susiestar" data-source="post: 709473" data-attributes="member: 1233"><p>I think that is awesome! I also think it is wonderful that he tests you and the staff when you visit. Why would that be awesome? The staff can only treat what they see. For several weeks my son was just the sweetest kid while he was in the hospital and no one could figure out why he was there. One nurse and his therapist could see that he was faking it to get out fast, and they worked with me to push all his triggers to make him explode one day in a therapy session. It was the most awful day for me, but it was a real breakthrough for him and it let the entire staff see what the real problems were and begin to really help him. So your son testing you and the staff is actually a very GOOD thing because it lets them see what they need to do to help him. </p><p></p><p>I like that they want to use the least medications possible as that should always be the goal, in my opinion. One thing that helped us with having my son always be medication compliant and never abuse his medications was to let him know what the medications do, what they are supposed to look like, and we always told him to talk to us if they made him feel good, bad, strange, or off in any way. You might be surprised at some of the strange side effects some of the medications can have, and talking about the ways they make you feel can be difficult for our kids. I always showed any new medications to my son (even at age 7 when he started on medications, and for his little brother at age 4 when he started on them for his allergies) and discussed briefly what they were supposed to do, in an age appropriate way. That way if a medication error happened, it was another person checking to catch the error. It also gave my child some sense of control which was very important to my kids. I don't know if it is important for your kids, but to my oldest son, that was hugely important. He knew that adults make the medical decisions, period, but his input would be listened to and taken into account. </p><p></p><p>I think this was a very important thing when it came to keeping him medication compliant in later years. He never refused medications even as a teen. It was one thing we really expected and braced for, but it never came. He did refuse one specific medication, but he asked to change it for something else and he didn't refuse his other medications. He refused it because it gave him strange side effects and they were ones that other people reported on many websites that he and I both found. I thought it was a reasonable request as it was a really painful side effect. So we changed it to a different medication. But that was really the only problem. He is now 25 and is still medication compliant. He has never used illegal drugs and only drinks in moderation. He says the reason he is medication compliant now is that he likes how his medications make him feel, that they let him stay in control of himself. He also says that by explaining what the medications were supposed to do from an early age, and showing him what they looked like, by giving him that sense of control, we helped him want to take his medications and work with the doctors. He felt like he had a role in the process, not like it was just happening to him.</p><p></p><p>Sorry if that rambled, but medication compliance is a tough thing and refusal is often something that we struggle with. I was just talking with my son about this because he is one of the few that I know of who really never refused his medications and I wondered why. So this is the result of that conversation.</p></blockquote><p></p>
[QUOTE="susiestar, post: 709473, member: 1233"] I think that is awesome! I also think it is wonderful that he tests you and the staff when you visit. Why would that be awesome? The staff can only treat what they see. For several weeks my son was just the sweetest kid while he was in the hospital and no one could figure out why he was there. One nurse and his therapist could see that he was faking it to get out fast, and they worked with me to push all his triggers to make him explode one day in a therapy session. It was the most awful day for me, but it was a real breakthrough for him and it let the entire staff see what the real problems were and begin to really help him. So your son testing you and the staff is actually a very GOOD thing because it lets them see what they need to do to help him. I like that they want to use the least medications possible as that should always be the goal, in my opinion. One thing that helped us with having my son always be medication compliant and never abuse his medications was to let him know what the medications do, what they are supposed to look like, and we always told him to talk to us if they made him feel good, bad, strange, or off in any way. You might be surprised at some of the strange side effects some of the medications can have, and talking about the ways they make you feel can be difficult for our kids. I always showed any new medications to my son (even at age 7 when he started on medications, and for his little brother at age 4 when he started on them for his allergies) and discussed briefly what they were supposed to do, in an age appropriate way. That way if a medication error happened, it was another person checking to catch the error. It also gave my child some sense of control which was very important to my kids. I don't know if it is important for your kids, but to my oldest son, that was hugely important. He knew that adults make the medical decisions, period, but his input would be listened to and taken into account. I think this was a very important thing when it came to keeping him medication compliant in later years. He never refused medications even as a teen. It was one thing we really expected and braced for, but it never came. He did refuse one specific medication, but he asked to change it for something else and he didn't refuse his other medications. He refused it because it gave him strange side effects and they were ones that other people reported on many websites that he and I both found. I thought it was a reasonable request as it was a really painful side effect. So we changed it to a different medication. But that was really the only problem. He is now 25 and is still medication compliant. He has never used illegal drugs and only drinks in moderation. He says the reason he is medication compliant now is that he likes how his medications make him feel, that they let him stay in control of himself. He also says that by explaining what the medications were supposed to do from an early age, and showing him what they looked like, by giving him that sense of control, we helped him want to take his medications and work with the doctors. He felt like he had a role in the process, not like it was just happening to him. Sorry if that rambled, but medication compliance is a tough thing and refusal is often something that we struggle with. I was just talking with my son about this because he is one of the few that I know of who really never refused his medications and I wondered why. So this is the result of that conversation. [/QUOTE]
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