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The Watercooler
Lips Turn Blue Laying Down
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<blockquote data-quote="Mamaof5" data-source="post: 506459"><p>I can't remember if the docs talked about dystonia or if you mentioned any testing for it...</p><p></p><p><a href="http://en.wikipedia.org/wiki/Dystonia" target="_blank">Dystonia - Wikipedia, the free encyclopedia</a></p><p></p><p>Her symptoms really strike me as multifocal or generalized dystonia symptoms. I've only ever seen what dystonia looks like in video clips and been described to what it looks and feels like but both seem very similar to your daughter's situation. Also, could they get her on an apnea machine just to ease your mind at night (not that it does, my youngest had one for preemie induced sleep apnea and cardiac issues)? At least you have a machine that can help prevent breathing issues in their track with faster response times for treatment in home...</p><p></p><p>I'm sorry your family is going through this...I don't know what else to say other than I'm here praying for all of you.</p></blockquote><p></p>
[QUOTE="Mamaof5, post: 506459"] I can't remember if the docs talked about dystonia or if you mentioned any testing for it... [url=http://en.wikipedia.org/wiki/Dystonia]Dystonia - Wikipedia, the free encyclopedia[/url] Her symptoms really strike me as multifocal or generalized dystonia symptoms. I've only ever seen what dystonia looks like in video clips and been described to what it looks and feels like but both seem very similar to your daughter's situation. Also, could they get her on an apnea machine just to ease your mind at night (not that it does, my youngest had one for preemie induced sleep apnea and cardiac issues)? At least you have a machine that can help prevent breathing issues in their track with faster response times for treatment in home... I'm sorry your family is going through this...I don't know what else to say other than I'm here praying for all of you. [/QUOTE]
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