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Looking Into MS
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<blockquote data-quote="Sue C" data-source="post: 131488" data-attributes="member: 87"><p>I have relapsing/remitting MS. Was diagnosed in 1989 and had symptoms since 1983. I also have a seizure disorder diagnosed around 1990-1991. The neuro said the seizures may be related to the MS and might not be. I say they must be 'cuz I didn't get them 'til after the MS!</p><p></p><p>The others have explained the EEG test. I brought a big scarf (a Babushka--haha) to wear on my way out 'cuz the glue/goop they used to attach the electrodes messed up my hair. It is hard to wash out...unless things have changed since I had mine. I even had a 24-hour EEG once. Fun fun.</p><p></p><p>The things that helped me were joining the National MS Society (free) and going to the newly diagnosed meetings. I asked all the questions I wanted, and I was with other people experiencing the same thing. I was so glad I went. (and husband came along which was a good thing) I also joined an MS support group. This also was very helpful. I haven't gone in quite awhile, but in the beginning I really needed it. If it turns out you do have MS, I would definitely take the newly diagnosed classes and join a support group (a live one). Oh yeah, there were also seminars on MS that I used to go to. Very informative.</p><p></p><p>If you have any other specific questions you would like to ask me, please PM me. But like Sharon said, MS affects everyone a little bit differently and there are different "types" of MS.</p><p></p><p>p.s. I understand your frustration about having to wait for the neuro appointment. It took a long time to get in. I went with a neuro who is well-known in my area for working with MS patients.</p><p></p><p>Take care,</p><p>sue</p></blockquote><p></p>
[QUOTE="Sue C, post: 131488, member: 87"] I have relapsing/remitting MS. Was diagnosed in 1989 and had symptoms since 1983. I also have a seizure disorder diagnosed around 1990-1991. The neuro said the seizures may be related to the MS and might not be. I say they must be 'cuz I didn't get them 'til after the MS! The others have explained the EEG test. I brought a big scarf (a Babushka--haha) to wear on my way out 'cuz the glue/goop they used to attach the electrodes messed up my hair. It is hard to wash out...unless things have changed since I had mine. I even had a 24-hour EEG once. Fun fun. The things that helped me were joining the National MS Society (free) and going to the newly diagnosed meetings. I asked all the questions I wanted, and I was with other people experiencing the same thing. I was so glad I went. (and husband came along which was a good thing) I also joined an MS support group. This also was very helpful. I haven't gone in quite awhile, but in the beginning I really needed it. If it turns out you do have MS, I would definitely take the newly diagnosed classes and join a support group (a live one). Oh yeah, there were also seminars on MS that I used to go to. Very informative. If you have any other specific questions you would like to ask me, please PM me. But like Sharon said, MS affects everyone a little bit differently and there are different "types" of MS. p.s. I understand your frustration about having to wait for the neuro appointment. It took a long time to get in. I went with a neuro who is well-known in my area for working with MS patients. Take care, sue [/QUOTE]
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