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Lump in my thumb
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<blockquote data-quote="susiestar" data-source="post: 184905" data-attributes="member: 1233"><p>Hey ladies, thanks for all the support.</p><p> </p><p>I can't get Vit D from the sun. I end up very ill, my skin gets a very strange texture (like plastic wrap stretched WAY too tight), and it does nothing for my vit D levels. this is with 20 minutes in moderate light with-no sunscreen. I am sensitive to sunscreen - it ends up making me feel very overheated and woozy - and I have tried everything on the market since it started 5 years ago.</p><p> </p><p>been there done that on the allergist. It is very strange. My eyes run, itch, get red. My nose runs, itches. ONLY benadryl works. But extensive allergy testing with a VERY highly qualified and regarded allergist showed absolutely NO reaction to ANYTHING. Only a reaction to the control sample. They even redid it, and did blood tests for things I know I react to. But nothing showed up. The kids all popped up with bumps like crazy. But not me. </p><p> </p><p>Since I have the appointment with the endocrinologist, teh doctor thought that it is best to wait for that appointment to try topical Vit d. I am not the only patient he shares with this endocrinologist (they are in the same bldg, on the same floor even) who reacts to Vit D this way. </p><p> </p><p>The thumb thingy is a "nodule" caused by the arthritis. It is not pus filled, it probably won't go away, but is not big enough to cut out. I will consult the hand surgeon my parents have had excellent results from. He pointed out several other "nodules", including one on my pinkie knuckle that is apparently the worst and will need surgery at some point.</p><p> </p><p>I didn't get a cortisone shot. He feels that the side effects might be more than we want to handle, and he wants to get an MRI first of the tailbone, to see if we have something else going on.</p><p> </p><p>He did prescribe Arava. I am quite happy about this - my mom has had AMAZING luck with it. The other option is Remicade, and it scares me. It has thrown a LOT of people into lupus - a really permanent side effect I don't need. I have seen the research on that one.</p><p> </p><p>If a family member, esp a close one like a sibling or parent, has had a result with a medication, you are more likely to have similar results. So mom having great luck with this medication means that I am more likely to have positive results. </p><p> </p><p>Anyway, you all make me smile. I really appreciate your insight and suggestions. I am going to call the hand surgeon on Monday. I am sure it will take months to get in, so I might as well do it now and cancel if I don't need it.</p><p> </p><p>The rheumy explained that he DID remember that I can't actually take the Vit D, but that he is required to have some proof that it was offered, otherwise he would be open to a lawsuit of some kind. He knows that there is NO intent to sue him for anything, but he does have to show that appropriate treatment was offered if the chart is ever audited. Esp since I am on pain medications. So I am OK with that. He can throw as many written prescriptions for Vit D as he needs to, as long as we both know I won't waste $$ on them.</p><p> </p><p>I hadquite a day today. My first "kid-free" outing in a long time. I met with Drama Queen Lucy (I know her from another board, so I called her to have lunch), went to a pet store having a fundraiser for therapy dogs (wanted info on seizure dogs - got some in case I ever need if for jess), spent time at the library, went to an estate sale, and met with an old friend from college who makes tie-dyed tshirts for a living. She GAVE me one!!! I was going to buy one, but she wouldn't let me. We ahd a brief, but good chat. </p><p> </p><p>Now I am wiped out, will pay for this for several days, but it was worth it! </p><p> </p><p>Hugs to all who want them!</p></blockquote><p></p>
[QUOTE="susiestar, post: 184905, member: 1233"] Hey ladies, thanks for all the support. I can't get Vit D from the sun. I end up very ill, my skin gets a very strange texture (like plastic wrap stretched WAY too tight), and it does nothing for my vit D levels. this is with 20 minutes in moderate light with-no sunscreen. I am sensitive to sunscreen - it ends up making me feel very overheated and woozy - and I have tried everything on the market since it started 5 years ago. been there done that on the allergist. It is very strange. My eyes run, itch, get red. My nose runs, itches. ONLY benadryl works. But extensive allergy testing with a VERY highly qualified and regarded allergist showed absolutely NO reaction to ANYTHING. Only a reaction to the control sample. They even redid it, and did blood tests for things I know I react to. But nothing showed up. The kids all popped up with bumps like crazy. But not me. Since I have the appointment with the endocrinologist, teh doctor thought that it is best to wait for that appointment to try topical Vit d. I am not the only patient he shares with this endocrinologist (they are in the same bldg, on the same floor even) who reacts to Vit D this way. The thumb thingy is a "nodule" caused by the arthritis. It is not pus filled, it probably won't go away, but is not big enough to cut out. I will consult the hand surgeon my parents have had excellent results from. He pointed out several other "nodules", including one on my pinkie knuckle that is apparently the worst and will need surgery at some point. I didn't get a cortisone shot. He feels that the side effects might be more than we want to handle, and he wants to get an MRI first of the tailbone, to see if we have something else going on. He did prescribe Arava. I am quite happy about this - my mom has had AMAZING luck with it. The other option is Remicade, and it scares me. It has thrown a LOT of people into lupus - a really permanent side effect I don't need. I have seen the research on that one. If a family member, esp a close one like a sibling or parent, has had a result with a medication, you are more likely to have similar results. So mom having great luck with this medication means that I am more likely to have positive results. Anyway, you all make me smile. I really appreciate your insight and suggestions. I am going to call the hand surgeon on Monday. I am sure it will take months to get in, so I might as well do it now and cancel if I don't need it. The rheumy explained that he DID remember that I can't actually take the Vit D, but that he is required to have some proof that it was offered, otherwise he would be open to a lawsuit of some kind. He knows that there is NO intent to sue him for anything, but he does have to show that appropriate treatment was offered if the chart is ever audited. Esp since I am on pain medications. So I am OK with that. He can throw as many written prescriptions for Vit D as he needs to, as long as we both know I won't waste $$ on them. I hadquite a day today. My first "kid-free" outing in a long time. I met with Drama Queen Lucy (I know her from another board, so I called her to have lunch), went to a pet store having a fundraiser for therapy dogs (wanted info on seizure dogs - got some in case I ever need if for jess), spent time at the library, went to an estate sale, and met with an old friend from college who makes tie-dyed tshirts for a living. She GAVE me one!!! I was going to buy one, but she wouldn't let me. We ahd a brief, but good chat. Now I am wiped out, will pay for this for several days, but it was worth it! Hugs to all who want them! [/QUOTE]
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