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General Parenting
My son is Explosive! PTSD,CD,ODD,RAT
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<blockquote data-quote="GoingNorth" data-source="post: 302781" data-attributes="member: 1963"><p>Prader-Willi boys do NOT have "male/female" genitals (hermaphrodism). They have smaller than normal testicles.</p><p></p><p>Interestingly, Prader-Willi children initially have very "floppy" muscle tone and have trouble eating at first. Many of them are "failure to thrive" babies.\</p><p></p><p>The ravenous appetite (caused by the part of the brain that tells us we have had enough to eat and turns off hunger isn't working)</p><p></p><p>This is a rough diagnosis to live with. Prader Willi sufferers very often require tightly supervised institutional living for life (special group homes, etc) as that is the only way to keep them safe from their own appetites.</p><p></p><p>Otherwise, they not only become morbidly obese, but will eat garbage, just about anything, and can become very ill from that.</p><p></p><p>PW kids show varying signs of learning difficulties, raging (over food), etc.</p><p></p><p>To make things even harder, PW kids have a different, slower metabolism, so actually need only about half the calories to maintain healthy weight that a normal person would.</p><p></p><p>I don't understand why, if PW is suspected, they don't just run the blood work.</p><p></p><p>If you Google Prader-Willi Syndrome, you will find a lot of info, including support groups and the like.</p></blockquote><p></p>
[QUOTE="GoingNorth, post: 302781, member: 1963"] Prader-Willi boys do NOT have "male/female" genitals (hermaphrodism). They have smaller than normal testicles. Interestingly, Prader-Willi children initially have very "floppy" muscle tone and have trouble eating at first. Many of them are "failure to thrive" babies.\ The ravenous appetite (caused by the part of the brain that tells us we have had enough to eat and turns off hunger isn't working) This is a rough diagnosis to live with. Prader Willi sufferers very often require tightly supervised institutional living for life (special group homes, etc) as that is the only way to keep them safe from their own appetites. Otherwise, they not only become morbidly obese, but will eat garbage, just about anything, and can become very ill from that. PW kids show varying signs of learning difficulties, raging (over food), etc. To make things even harder, PW kids have a different, slower metabolism, so actually need only about half the calories to maintain healthy weight that a normal person would. I don't understand why, if PW is suspected, they don't just run the blood work. If you Google Prader-Willi Syndrome, you will find a lot of info, including support groups and the like. [/QUOTE]
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