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<blockquote data-quote="Dara" data-source="post: 176526" data-attributes="member: 3572"><p>I am going to try and answer all of the questions: Sammy has seen a neuropsychologist. The only one we could find in our area and he was horrible. Not only did he not spend any time with Sammy, He spoke in double talk and only used phrases that nobody understood and didnt want to see Sammy again. We got nothing out of that appointment in fact we lost some brain cells from that one!</p><p>sammy's Neurologist is a behavior neurologist and he is someone who we actually like. He is not surprised by anything we have told him about Sammy. He says that he has Pervasive Developmental Disorder (PDD) and subclinical epilepsy. He told us as the seizures are controlled, more Pervasive Developmental Disorder (PDD) symptoms may appear. He was right. We tried Zoloft to help with the mood swings and it didnt do anything but keep him up at night, The dr then wanted to try Ritalin because it could help with the impulse control issue and mood swings and help repair the part of his brain that was damaged from the seizures. After the first dose Sammy began tounge thrusts so that ended that one. It seems that Sammy's system is not quite ready for these medications. DOnt get me wrong I know that we will be on something at some point but for whatever reason he cant handle them right now. We have our appointment with the neurologist in sept. The reason that Sammy is not in a special needs preschool is because he copies the child who is worse off who has no language or autistic behaviors. We need him around normal kids who have normal behaviors where he can learn from them. The Speech therapist did note that in school he did not know how to initiate an activity with friends or centers that were set up. He would just meander about until someone would help him get involoved. That is something that we have been talking to his ABA therapists about for almost a year that we wanted to address. It actually was my idea and the Speech therapists idea to evaluate at home as well. Basically we are going to be using a picture schedule to really do the first this and then this idea. Sammy is a very high anxiety child. I used to be that way too. I used to be perfect at school or anywhere else I was and come home and explode...not quite to the point that Sammy does. I do believe that part of it is that he is comfortable wiht us and knows we love him no matter what. I think another part is that this is a child who has been full of rage since day one for whatever reason we may never know. I think another part is that he thrives on negativity. If something negative has happened he holds on to that like an addiction and that behavior doesnt stop. Myrelationship with him is difficult. He spiralled out of control when he was 15 months old I was teaching and he was in the class next to me. He didnt understand it and it made him mad. Our relationship has never recovered. That anger from that moment has become an addiction for our relationship. That is just how he is around me and the doctors say it is very hard to break as we can see. I am calling the neurologists office today and I am calling the Psychiatrist office today. I dont think that there is a fix it plan but there has to be something that can at least help make it a little better!</p></blockquote><p></p>
[QUOTE="Dara, post: 176526, member: 3572"] I am going to try and answer all of the questions: Sammy has seen a neuropsychologist. The only one we could find in our area and he was horrible. Not only did he not spend any time with Sammy, He spoke in double talk and only used phrases that nobody understood and didnt want to see Sammy again. We got nothing out of that appointment in fact we lost some brain cells from that one! sammy's Neurologist is a behavior neurologist and he is someone who we actually like. He is not surprised by anything we have told him about Sammy. He says that he has Pervasive Developmental Disorder (PDD) and subclinical epilepsy. He told us as the seizures are controlled, more Pervasive Developmental Disorder (PDD) symptoms may appear. He was right. We tried Zoloft to help with the mood swings and it didnt do anything but keep him up at night, The dr then wanted to try Ritalin because it could help with the impulse control issue and mood swings and help repair the part of his brain that was damaged from the seizures. After the first dose Sammy began tounge thrusts so that ended that one. It seems that Sammy's system is not quite ready for these medications. DOnt get me wrong I know that we will be on something at some point but for whatever reason he cant handle them right now. We have our appointment with the neurologist in sept. The reason that Sammy is not in a special needs preschool is because he copies the child who is worse off who has no language or autistic behaviors. We need him around normal kids who have normal behaviors where he can learn from them. The Speech therapist did note that in school he did not know how to initiate an activity with friends or centers that were set up. He would just meander about until someone would help him get involoved. That is something that we have been talking to his ABA therapists about for almost a year that we wanted to address. It actually was my idea and the Speech therapists idea to evaluate at home as well. Basically we are going to be using a picture schedule to really do the first this and then this idea. Sammy is a very high anxiety child. I used to be that way too. I used to be perfect at school or anywhere else I was and come home and explode...not quite to the point that Sammy does. I do believe that part of it is that he is comfortable wiht us and knows we love him no matter what. I think another part is that this is a child who has been full of rage since day one for whatever reason we may never know. I think another part is that he thrives on negativity. If something negative has happened he holds on to that like an addiction and that behavior doesnt stop. Myrelationship with him is difficult. He spiralled out of control when he was 15 months old I was teaching and he was in the class next to me. He didnt understand it and it made him mad. Our relationship has never recovered. That anger from that moment has become an addiction for our relationship. That is just how he is around me and the doctors say it is very hard to break as we can see. I am calling the neurologists office today and I am calling the Psychiatrist office today. I dont think that there is a fix it plan but there has to be something that can at least help make it a little better! [/QUOTE]
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