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Our own good/bad experiences with medications for our kids
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<blockquote data-quote="Marguerite" data-source="post: 229168" data-attributes="member: 1991"><p>I won't include myself on the list here - I still can't point to a diagnosis that doctors all agree on, and I suspect I get some odd reactions tat would skew the results. However, I will mention that I have been tried on most antidepressants (as potential pain management) and had reactions to just about all of them. Some had me bombed out and sedated (tryptanol, especially) while others had my mind racing and thinking weird thoughts (tofranil). Amantadine had me feeling very depressed half an hour after taking it. Antiepileptics (again, for pain) caused liver damage. The only pain medications I can tolerate are opiates.</p><p></p><p>The kids:</p><p>easy child - no diagnosis, has had anxiety issues, not currently taking medications, has had no reactions.</p><p></p><p>difficult child 1 - diagnosis ADHD at age 6. Prescribed ritalin, varied dosage. As he got older and needed more, we noticed rebound. This was aggravated by fluctuating dosage trough the school day due to combination of frequent doses needed plus poor follow-up with medication administration by school. We had no Cencerta in those days.</p><p>At 14 he was diagnosed as Asperger's as well, ritalin was changed to dexamphetamine and voila! No more rebound. However, at 16 he became very depressed (broke up with first girlfriend) and was suicidal, so was put on Zoloft. No problems on Zoloft, except he can't come off it because he gets very Obsessive Compulsive Disorder (OCD) without it. </p><p>Took risperdal for a couple of years with minimal benefit and great weight gain. It also sedated him. When he stopped taking it, he slowly lost the fat he gained.</p><p></p><p>easy child 2/difficult child 2 - diagnosed at age 10 with ADD (inattentive type) plus some Asperger's traits. Takes dexamphetamine in privately compounded long-acting form. Is very "blonde" without it, despite having IQ of about 145. No other medications except currently takes tryptanol for stomach problem, it seems to be helping.</p><p></p><p>difficult child 3 - diagnosed at 3 as ADHD plus high-functioning autistic. Takes long-acting dexamphetamine with considerable benefit. Has also tried Zoloft (initial improvement, then the accumulating lack of sleep undermined any benefit as he became increasingly manic). Luvox (allergic reaction). Risperdal taken for about 2 years, no sedation/weight gain problems like his brother, although when we stopped the risperdal (expensive with not enough benefit) we noticed difficult child 3 lost weight, which worried the doctor.</p><p>Recent experimentation with Concerta - disastrous, he didn't get the benefit he needed (dose probably too low) and also got bad rebound. And just before Christmas, Strattera. It was awful, he became more emotional, very short fuse, easily upset, raging, totally lost it at a Christmas party and threatened to kill us. Attacked me physically, then dissolved into tears and suicidal depression. I don't recommend it. He'd been on Strattera for three days.</p><p></p><p>I do wonder if difficult child 3's problems with antidepressants are related to mine. I also know that I'm highly sensitive to pot, it hits me hard. I was unwittingly given some 'hash brownies' at work once, I then had to drive my kids home through peak hour traffic. Luckily it was a Friday afternoon. I spent that night and most of the next day feeling like I had to hold on to the furniture to stop my feet from lifting off the floor and walking me through the air to the ceiling. By Sunday I no longer had to hold on to the underside of the kitchen benches. I was very angry with the idiot who doped me, by the time I got in to work but when I shouted at her the others told me off for being a bad sport; besides, they hadn't been so badly affected (they had also eaten them, but had known what they were) so I must be making it up. Needless to say, what she did is these days considered assault. So I surmise - maybe I am unusually sensitive to that group of chemicals. And maybe difficult child 3 is too.</p><p></p><p>easy child 2/difficult child 2 got her drink spiked just before Christmas, we're fairly sure it was GHB. Her reaction was severe, she was hallucinating, vomiting, totally out of it for about 10 hours, barely conscious/unconscious. Either a heavy dose or a bad reaction. She's made a point of avoiding drugs because I have warned her, kids who need ADHD medications generally do badly if they take drugs. She feels this bad reaction was proof of my advice and has been badly scared by it.</p><p></p><p>So that's us, in a nutshell.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 229168, member: 1991"] I won't include myself on the list here - I still can't point to a diagnosis that doctors all agree on, and I suspect I get some odd reactions tat would skew the results. However, I will mention that I have been tried on most antidepressants (as potential pain management) and had reactions to just about all of them. Some had me bombed out and sedated (tryptanol, especially) while others had my mind racing and thinking weird thoughts (tofranil). Amantadine had me feeling very depressed half an hour after taking it. Antiepileptics (again, for pain) caused liver damage. The only pain medications I can tolerate are opiates. The kids: easy child - no diagnosis, has had anxiety issues, not currently taking medications, has had no reactions. difficult child 1 - diagnosis ADHD at age 6. Prescribed ritalin, varied dosage. As he got older and needed more, we noticed rebound. This was aggravated by fluctuating dosage trough the school day due to combination of frequent doses needed plus poor follow-up with medication administration by school. We had no Cencerta in those days. At 14 he was diagnosed as Asperger's as well, ritalin was changed to dexamphetamine and voila! No more rebound. However, at 16 he became very depressed (broke up with first girlfriend) and was suicidal, so was put on Zoloft. No problems on Zoloft, except he can't come off it because he gets very Obsessive Compulsive Disorder (OCD) without it. Took risperdal for a couple of years with minimal benefit and great weight gain. It also sedated him. When he stopped taking it, he slowly lost the fat he gained. easy child 2/difficult child 2 - diagnosed at age 10 with ADD (inattentive type) plus some Asperger's traits. Takes dexamphetamine in privately compounded long-acting form. Is very "blonde" without it, despite having IQ of about 145. No other medications except currently takes tryptanol for stomach problem, it seems to be helping. difficult child 3 - diagnosed at 3 as ADHD plus high-functioning autistic. Takes long-acting dexamphetamine with considerable benefit. Has also tried Zoloft (initial improvement, then the accumulating lack of sleep undermined any benefit as he became increasingly manic). Luvox (allergic reaction). Risperdal taken for about 2 years, no sedation/weight gain problems like his brother, although when we stopped the risperdal (expensive with not enough benefit) we noticed difficult child 3 lost weight, which worried the doctor. Recent experimentation with Concerta - disastrous, he didn't get the benefit he needed (dose probably too low) and also got bad rebound. And just before Christmas, Strattera. It was awful, he became more emotional, very short fuse, easily upset, raging, totally lost it at a Christmas party and threatened to kill us. Attacked me physically, then dissolved into tears and suicidal depression. I don't recommend it. He'd been on Strattera for three days. I do wonder if difficult child 3's problems with antidepressants are related to mine. I also know that I'm highly sensitive to pot, it hits me hard. I was unwittingly given some 'hash brownies' at work once, I then had to drive my kids home through peak hour traffic. Luckily it was a Friday afternoon. I spent that night and most of the next day feeling like I had to hold on to the furniture to stop my feet from lifting off the floor and walking me through the air to the ceiling. By Sunday I no longer had to hold on to the underside of the kitchen benches. I was very angry with the idiot who doped me, by the time I got in to work but when I shouted at her the others told me off for being a bad sport; besides, they hadn't been so badly affected (they had also eaten them, but had known what they were) so I must be making it up. Needless to say, what she did is these days considered assault. So I surmise - maybe I am unusually sensitive to that group of chemicals. And maybe difficult child 3 is too. easy child 2/difficult child 2 got her drink spiked just before Christmas, we're fairly sure it was GHB. Her reaction was severe, she was hallucinating, vomiting, totally out of it for about 10 hours, barely conscious/unconscious. Either a heavy dose or a bad reaction. She's made a point of avoiding drugs because I have warned her, kids who need ADHD medications generally do badly if they take drugs. She feels this bad reaction was proof of my advice and has been badly scared by it. So that's us, in a nutshell. Marg [/QUOTE]
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