Please Pray for Julius

[PonyGirl]

We found out yesterday, difficult children girlfriend, S, is a carrier of a rare genetic disorder called Wiskott-Aldrich Syndrome. They will test the baby tomorrow. He is due January 28, but if test result shows WAS, he will be delivered early, and an attempt at a cure will be made by use of a cord-blood transfer.

My friends, this boy will more than likely have a tough time with life anyways, given who his daddy is..........difficult child continues to struggle with his addictions and suffer the consequences. I pray the test is negative. Research I've read says if the mother is a carrier, there is a 50/50 chance she will pass it to her son. Survival rate of those with WAS is anywhere from 5 to 35 years.

Heavy heart.

Peace

 

[hearts and roses]

{{{ponygirl}}} I'm so sorry - this WAS disorder sounds so grim. Obviously, I hope the baby tests negative and I hope that difficult child can stay clean and his girlfriend strong. Sending hugs and prayers.

 

[JJJ]

I'm so sorry you are facing such a scary situation. I hope the test is negative.

 

[witzend]

I will hold out hope that should it be needed, the cord blood transfer will help him to be a happy healthy boy. Hopefully, in any case, they will be able to set the cord blood aside and save it,as it can be a lifesaver later in life, as well.

 

[Suz]

What a potentially sad situation. I'm so sorry. I'm sending good thoughts for a positive result.

Suz

 

[janebrain]

Oh, please let us know as soon as you find out how the test comes out. Thinking of you, hoping for the best...
Jane

 

[DDD]

You can count on my support and prayers, Pony. Geez.......life is so very complicated! Hugs. DDD

 

[susiestar]

Sending prayers and gentle hugs.

 

[Star*]

Okay Pony -

Here was my initial thought - I don't feel there is anything wrong with this baby. I've been having really good it's a boy, it's a girl...it's twins, feelings and when you told me about the WASP in Julian - my initial thought was if the Mom is a carrier there is a chance for him but we're going to keep positive vibes for my little Grand Nephew.

-Just because......I think he's GRAND.

HUGE PRAYERS going up for our little Julian.

Hugs
Star

 

[Jena]

I"m sending my hugs and saying a prayer as well. I hope that the test comes back negative.

((((hugs)))))

 

[goldenguru]

So sorry PonyGirl. Doesn't seem fair to have so many potential difficulties before one's birth. Be strong.

 

[trinityroyal]

Adding in my prayers and positive thoughts that Julius is in the happy 50%, and that if he does have the condition the cord blood transfer helps to alleviate things.

Sending many gentle hugs and hoping for a good outcome.

Trinity

 

[PonyGirl]

Thanks everybody. We'll get the results in 2 weeks. Hoping for a really great early Christmas Present!!

Oh and Star? It'll probably work no matter what, but go ahead and say prayers for JuliUS instead of JuliAN. (Although, who am I to say, there's probably a Julian somewhere who could use our prayers, too!)

Peace

 

[Big Bad Kitty]

I'll pray for Julius, Julian, heck I'll pray for Juliet.

And for you, Pony, for your comfort and peace.

 

[katya02]

Hoping you get the best possible news as a Christmas present - sending hugs and strength.

 

[KTMom91]

Sending hugs and saying prayers.

 

[Andy]

Sending prayers for good news and strength during this waiting period.

 

[everywoman]

Hoping for a good outcome and test results will come back negative. Hugs.

 

[Hound dog]

Sorry I've got in on this so late. Adding Mom, baby, You, and difficult child to my prayers Pony. Mom has been thru enough, and so has grandma.

(((hugs)))

 

[totoro]

Sending out prayers for a *Negative* Christmas Present as well.
Only positive thoughts.