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TURNERS SYNDROME and Behavioral Disorders?
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<blockquote data-quote="shad16_12" data-source="post: 253379" data-attributes="member: 6964"><p>["Cliinical experience and psychological research have identified adolescence as a particular critical period for girls with Tourette's Syndrome. </p><p></p><p><em><strong>Although Turner's Syndrome does not seem to be associated with an increased risk of psychiatric disturbance, some problems in social and emotional adjustmenthave been noted. </strong></em></p><p></p><p>Adjustment problems in the areas if immaturity, difficulties in the abilities to concentrate, and increased activity level have been documented in multiple samples of younger girls with Tourette's Syndrome. For adolescent girls with Tourette's Syndrome, immaturity, poor self-esteem, and anxiety seem to be central issues. Girls with Turner's Syndrome have been found to have more problems in school and with peer relationships than do girls with short stature who do not have Tourette's Syndrome. These appear to intensify during the adolescent years.</p><p></p><p>There are three major areas of risk: immaturity, isolation from peers, and poor self-esteem. Not all girls with Turner's Syndrome will experience these problems. Adolescent cognitive changes may also be delayed in girls with Tourette's Syndrome. Thus individuals, especially those with learning disabilities, may be initially overwhelmed by the increased academic demands of middle and high school.</p><p></p><p>Parents, teachers and friends may also find it difficult to see these girls moving into young womanhood and continue to treat them ina moer childlike fashion. These same factors may contribute to withdrawl, or in some, cases, exclusion from peers. Some girls with Tourette's Syndrome tend to retain immature interests, such as doll play, as theri peers are becoming increasingly focussed on boys, clothes, and social cliques. </p><p></p><p>Although the problems cannot be totally eliminated, they can be minimized and steps can be taken to build skills necessary to foster appropriate adolescent psychological growth and developement. It is critical that parents take an active role in helping their daughters navigate this difficult period even if much of what they do is "behind the scenes". To facilitate maturity, age-appropriate expectations are critical, as well as hormone therapy.</p><p></p><p>At school, it may be necessary to get help from teachers and administrators to address teasing. It is important to encourage the girl with Tourette's Syndrome to handle routine comments about her size and to help her develope a "thick skin" against minor teasing. </p><p></p><p>Parents may have to take an unusually active role in their daughters social life. This may mean being willing to do more than their fair share of driving, having kids over to the house more often, and structuring activities to allow a daughter to spend positive time with peers. One important way to to help structure social activities is to make sure she is persuing and developing her own areas of talent, be they gymnastics, music, dance etc. Becoming skilled in such areas is a terrific boost to self-esteem, while also providing a natural social forum.</p><p></p><p>Another way to help girls with Tourette's Syndrome to develope good social skills is to provide good education reagarding Turner's Syndrome. This education should allow the girl to understand Tourette's Syndrome without allowing Turner's Syndrome to take on too much importance in their lives.-they are first and foremost a multifaceted person and having Tourette's Syndrome is just one aspect of who they are. Getting a chance to meet other girls with Tourette's Syndrome can be very helpful."</p><p>**TURNER SYNDROME--"ACROSS THE LIFESPAN" Dr Joanne Rovet...Published by Klein Graphics.</p><p></p><p>***It is my understanding that Tourette's Syndrome is associated with ADHD/ANXIETY/NonVerbal Learning Disorder (NVLD) </p><p>My son fits this profile he has been diagnosis'd with all three.*** I have talked to other parents with girls with Tourette's Syndrome and they have not been diagnosed with any of these but may have issues related to the issues Dr Rovet talks about. Im sure those issues can cause hyperactivity and anxiety. I think the degree to which the psycho emotional problems develope to the point of being diagnosed are dependant in part on the enivironment and circumstances of the childs life. The learning profile is beyond our control but if there are other events in the childs life (seperation/divorce, financial strain, relocation, parents emotional state etc) that exascerbate possible other diagnosis...then they may develope ADHD and or anxiety disorders.</p><p></p><p>I agree that regardless of the underlying diagnosis of Turners Sydrome, the important thing is to deal with the symptoms that you are seeing from a psychiatric perspective. Some of it may be related to feedback she's getting from others...some may be her own view of herself. The Tourette's Syndrome diagnosis does give you a place to start because there are a unique set of challenges that can come with a Tourette's Syndrome dignosis so it gives you a place to start investigating.</p><p></p><p>Turner's SYndrome Society of the United States <a href="http://www.turnersyndrome.org/" target="_blank">http://www.turnersyndrome.org/</a></p><p>They may be able to help hook you up with another family in your area. Also your endocrinologist or genetics Dept at your local children's hospital may have a list of families who are wanting to connect.</p><p>sonja</p></blockquote><p></p>
[QUOTE="shad16_12, post: 253379, member: 6964"] ["Cliinical experience and psychological research have identified adolescence as a particular critical period for girls with Tourette's Syndrome. [I][B]Although Turner's Syndrome does not seem to be associated with an increased risk of psychiatric disturbance, some problems in social and emotional adjustmenthave been noted. [/B][/I] Adjustment problems in the areas if immaturity, difficulties in the abilities to concentrate, and increased activity level have been documented in multiple samples of younger girls with Tourette's Syndrome. For adolescent girls with Tourette's Syndrome, immaturity, poor self-esteem, and anxiety seem to be central issues. Girls with Turner's Syndrome have been found to have more problems in school and with peer relationships than do girls with short stature who do not have Tourette's Syndrome. These appear to intensify during the adolescent years. There are three major areas of risk: immaturity, isolation from peers, and poor self-esteem. Not all girls with Turner's Syndrome will experience these problems. Adolescent cognitive changes may also be delayed in girls with Tourette's Syndrome. Thus individuals, especially those with learning disabilities, may be initially overwhelmed by the increased academic demands of middle and high school. Parents, teachers and friends may also find it difficult to see these girls moving into young womanhood and continue to treat them ina moer childlike fashion. These same factors may contribute to withdrawl, or in some, cases, exclusion from peers. Some girls with Tourette's Syndrome tend to retain immature interests, such as doll play, as theri peers are becoming increasingly focussed on boys, clothes, and social cliques. Although the problems cannot be totally eliminated, they can be minimized and steps can be taken to build skills necessary to foster appropriate adolescent psychological growth and developement. It is critical that parents take an active role in helping their daughters navigate this difficult period even if much of what they do is "behind the scenes". To facilitate maturity, age-appropriate expectations are critical, as well as hormone therapy. At school, it may be necessary to get help from teachers and administrators to address teasing. It is important to encourage the girl with Tourette's Syndrome to handle routine comments about her size and to help her develope a "thick skin" against minor teasing. Parents may have to take an unusually active role in their daughters social life. This may mean being willing to do more than their fair share of driving, having kids over to the house more often, and structuring activities to allow a daughter to spend positive time with peers. One important way to to help structure social activities is to make sure she is persuing and developing her own areas of talent, be they gymnastics, music, dance etc. Becoming skilled in such areas is a terrific boost to self-esteem, while also providing a natural social forum. Another way to help girls with Tourette's Syndrome to develope good social skills is to provide good education reagarding Turner's Syndrome. This education should allow the girl to understand Tourette's Syndrome without allowing Turner's Syndrome to take on too much importance in their lives.-they are first and foremost a multifaceted person and having Tourette's Syndrome is just one aspect of who they are. Getting a chance to meet other girls with Tourette's Syndrome can be very helpful." **TURNER SYNDROME--"ACROSS THE LIFESPAN" Dr Joanne Rovet...Published by Klein Graphics. ***It is my understanding that Tourette's Syndrome is associated with ADHD/ANXIETY/NonVerbal Learning Disorder (NVLD) My son fits this profile he has been diagnosis'd with all three.*** I have talked to other parents with girls with Tourette's Syndrome and they have not been diagnosed with any of these but may have issues related to the issues Dr Rovet talks about. Im sure those issues can cause hyperactivity and anxiety. I think the degree to which the psycho emotional problems develope to the point of being diagnosed are dependant in part on the enivironment and circumstances of the childs life. The learning profile is beyond our control but if there are other events in the childs life (seperation/divorce, financial strain, relocation, parents emotional state etc) that exascerbate possible other diagnosis...then they may develope ADHD and or anxiety disorders. I agree that regardless of the underlying diagnosis of Turners Sydrome, the important thing is to deal with the symptoms that you are seeing from a psychiatric perspective. Some of it may be related to feedback she's getting from others...some may be her own view of herself. The Tourette's Syndrome diagnosis does give you a place to start because there are a unique set of challenges that can come with a Tourette's Syndrome dignosis so it gives you a place to start investigating. Turner's SYndrome Society of the United States [url]http://www.turnersyndrome.org/[/url] They may be able to help hook you up with another family in your area. Also your endocrinologist or genetics Dept at your local children's hospital may have a list of families who are wanting to connect. sonja [/QUOTE]
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