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When we're gone what happens to our ...
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<blockquote data-quote="Smithmom" data-source="post: 741326" data-attributes="member: 23371"><p>Tiredout</p><p>Thinking about what you said about not having an aide. I do understand. If you enjoy life go for it, that's what its all about. If your son needed more care eg if there were breathing machines signaling crisis multiple times an hour you would probably feel differently. The level of stress would be different. My autistic son needs someone to check on him for specific things daily. But having him here is enjoyable to me. Its the opposite of stressful. I know other parents with autistic children who need to watch them 24/7 to prevent wandering out the door, self-harm, etc. I can understand why they opt for an out of home placement. The balance I worry about is my selfishly enjoying my son vs his future when I'm gone. That's why my hope is to set up something that can provide a continuum of care for both of us. One home that will be mine for as long as possible and a group home for him for his life when I'm gone.</p></blockquote><p></p>
[QUOTE="Smithmom, post: 741326, member: 23371"] Tiredout Thinking about what you said about not having an aide. I do understand. If you enjoy life go for it, that's what its all about. If your son needed more care eg if there were breathing machines signaling crisis multiple times an hour you would probably feel differently. The level of stress would be different. My autistic son needs someone to check on him for specific things daily. But having him here is enjoyable to me. Its the opposite of stressful. I know other parents with autistic children who need to watch them 24/7 to prevent wandering out the door, self-harm, etc. I can understand why they opt for an out of home placement. The balance I worry about is my selfishly enjoying my son vs his future when I'm gone. That's why my hope is to set up something that can provide a continuum of care for both of us. One home that will be mine for as long as possible and a group home for him for his life when I'm gone. [/QUOTE]
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