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Yet another meeting with Borderline (BPD) team
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<blockquote data-quote="Mirabelle" data-source="post: 762295" data-attributes="member: 28712"><p>Hello Simion, </p><p></p><p>I hope things are going ok for you at the moment (as ok as they can be of course.) The frustration you expressed with social services, and that susistar also commented on, is extremely relatable. It is very hard to relinquish responsibility for your adult child when social services will not do their job.</p><p></p><p>We were approached by a mental health agency called ACT about six months ago after my son's last stint in the psychiatric ward. They are funded by the state, and had us switch my son's disability benefits to something called Direct Care so that they would be funded and permitted to provide services for him. Well...........it has been mostly a joke, and not a funny one. The psychiatrist he was supposed to see every two weeks in reality sees him every two months. The person who arranges for suitable employment has been a complete no show. A new person my husband spoke with two weeks ago candidly admitted that my son's application for public housing had fallen through the cracks and that they would have to start over again. This is after months of other staff assuring my husband the wheels were in motion. At one point they tried to put him in a nursing home for people with severe intellectual disabilities. A highly intelligent young man with schizophrenia and bipolar does not belong in such a place. They told us at the time it was their only option and acted as though they were exasperated with us!!! Pardon!!!???</p><p></p><p>As you said, the people who are supposed to be supporting him in daily living are just not. So we are still taking him to medical appointments, ensuring that his prescriptions are filled, making sure he has groceries etc. All of this is paid for by his disability check, but we are still playing the role of responsible support staff afraid to go away for the weekend. A hard row to hoe when we are told frequently by our son that his situation is our fault, and that we owe it to him to house and feed him forever more because we are his parents. </p><p></p><p>It was helpful to read susistar's comments that such agencies will try and put as much of the heavy lifting on the family as they can to relieve their own burden, when in reality our children are ENTITLED to these government services as disabled individuals. It is really quite disgusting to me. As you say, how in the world could a disabled person advocate for themselves or have the first idea of how to access these services, or realize that they even exist, without an involved family. It makes me sick.</p><p></p><p>My husband is poised to make our first formal complaint. He is concerned that we might be blackballed. So we are not sure quite what to do about that at the moment. How have your complaints been handled? Do you think they have helped or hurt your case?</p><p></p><p>I wish some peace for all us in this journey. </p><p></p><p>With best wishes, </p><p>Mirabelle</p></blockquote><p></p>
[QUOTE="Mirabelle, post: 762295, member: 28712"] Hello Simion, I hope things are going ok for you at the moment (as ok as they can be of course.) The frustration you expressed with social services, and that susistar also commented on, is extremely relatable. It is very hard to relinquish responsibility for your adult child when social services will not do their job. We were approached by a mental health agency called ACT about six months ago after my son's last stint in the psychiatric ward. They are funded by the state, and had us switch my son's disability benefits to something called Direct Care so that they would be funded and permitted to provide services for him. Well...........it has been mostly a joke, and not a funny one. The psychiatrist he was supposed to see every two weeks in reality sees him every two months. The person who arranges for suitable employment has been a complete no show. A new person my husband spoke with two weeks ago candidly admitted that my son's application for public housing had fallen through the cracks and that they would have to start over again. This is after months of other staff assuring my husband the wheels were in motion. At one point they tried to put him in a nursing home for people with severe intellectual disabilities. A highly intelligent young man with schizophrenia and bipolar does not belong in such a place. They told us at the time it was their only option and acted as though they were exasperated with us!!! Pardon!!!??? As you said, the people who are supposed to be supporting him in daily living are just not. So we are still taking him to medical appointments, ensuring that his prescriptions are filled, making sure he has groceries etc. All of this is paid for by his disability check, but we are still playing the role of responsible support staff afraid to go away for the weekend. A hard row to hoe when we are told frequently by our son that his situation is our fault, and that we owe it to him to house and feed him forever more because we are his parents. It was helpful to read susistar's comments that such agencies will try and put as much of the heavy lifting on the family as they can to relieve their own burden, when in reality our children are ENTITLED to these government services as disabled individuals. It is really quite disgusting to me. As you say, how in the world could a disabled person advocate for themselves or have the first idea of how to access these services, or realize that they even exist, without an involved family. It makes me sick. My husband is poised to make our first formal complaint. He is concerned that we might be blackballed. So we are not sure quite what to do about that at the moment. How have your complaints been handled? Do you think they have helped or hurt your case? I wish some peace for all us in this journey. With best wishes, Mirabelle [/QUOTE]
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