Holy Potatoes, Friends! I think that the trend in this thread has just made very apparent the sensitive struggle of every parent who has a child who for whatever reason proves challenging and difficult.
I think that it is important to say that I really love and appreciate ALL of your comments on my experience. Each of us is in a different place, emotionally and relationally, with our difficult child(s). None of us is here to diagnose each other's kids, but instead to share their experiences, good and bad, as they navigate this painful journey. No one should have to go thru this alone and let's not allow these very diverse and difficult struggles to divide us.
To refocus the intent of my purpose in sharing, I want you to know that I am sharing a very complicated story in a very brief forum. Also, it has been a journey of ups and downs, trials and errors, good days and bad, and will continue to be. We have loved, cared for and tried to meet the increasing needs of each of our children as we were able to identify them. Having a child with mental and emotional challenges is entirely different from having a child with Down's Syndrome or a disability that is clearly visible, allowing parents and the community to adjust their expectations accordingly.
Maybe it somehow got overlooked in the thread, let me recap:
1. difficult child is a loved and valued member of our family, he is here because we choose to parent him, not because we have to.
2. difficult child has been extremely challenging to diagnose and discern what his mental capacity is or the stability of his psyche.
3. difficult child has been evaluated and under the care of our state's foremost pediatric group, two neurologist who specialize in substance exposed infants and children, a team of Early Childhood Interventionists, seasoned teachers, and a neuro psychologist who specializes in adoption, bonding and attachment, all of whom agree that he is a difficult read and likely a mixed diagnosis of impaired cognitive abilities, an attachment deficit of unknown degree, and mood disregulation.
4. "labeling the exact cause" of difficult child's disabilities is no longer the focus of this very qualified and capable team of professionals, instead "how can we help him work with what he has" is the focus. And its no simple task.
5. difficult child is not ostracized or alienated by our family. His obtuse, self centered behaviors and anti-social manner of relating to his siblings and my husband and me creates distance in his relationship. It is very challenging for both children and adults alike to understand why difficult child presents so charming and capable one minute but then becomes so oppositional, cold and uncooperative the next with no obvious reason for the transitions. His siblings are some of the most forgiving, generous, patient people I know and I can assure that 20 years from now, in the unfortunate even that nothing we do to help difficult child works, he is a low functioning, anti-social adult, it is these 7 siblings who will still claim him as their own, even if he's intolerable to society.
6. Only God knows what the future holds for our difficult child. I will continue to constructively use what I know about him and the tendencies he exhibits to determine what is and is not safe for him or others, including YOU and YOURS, and ME and MINE.
7. Please hear that I am sharing how I am managing MY feelings and experiences about how struggling to meet my difficult child's special needs and challenges are affect MY life. I am NOT sharing his challenges so you can judge how well I am handling them. If you don't understand the difference between these two statements, please refrain from sharing.
8. The fact that our difficult child is adopted has no real bearing on MY feelings and understanding of who he is today. We don't regret adopting him, we had no expectations that he would be perfect or without challenges, and will continue to advocate for him always.
9. We don't believe we caused him to be a disabled child, but we will continue to exhaust every resource trying to help him have a healthy, happy life. We don't hate our difficult child, we hate the way his maladaption, anti-social, and passive aggressive tendencies sabotage his efforts to make friends, get and education, and enjoy a deep, meaningful relationship with family members. We are grieving HIS losses in addition to setting aside our personal frustration and anger when he does hurtful or destructive things to our family and home.
10. To be clear, difficult child has intentionally physically hurt others seriously and made threats to kill the loved ones of children whom he has felt "wronged" by. He has told his 8 year old sister when they were playing alone and he didn't get his way, that he would kill me so that she would see how mad he was at her. While he does not EVER throw tantrums, scream or yell at anyone, he has a very cold, detached demeanor that is very flat in affect and lacking normal displays of emotion. His waters run deep and we would be asleep at the wheel if we did not continue to keep a close eye on this child. difficult child's neuro psychologist strongly believes that our vigilance and additional supervision by older siblings that has kept a serious incident from occurring. This may not continue to be the case as our older children move out, get more involved outside the home and difficult child gets physically bigger and the strong tides of puberty start rolling in.
Thanks for listening.