I think my body hates me. In the last twenty or so years, I have done multiple elimination diets, allergy testing, girlfriend/cf diets, IBs diets, yeast diets, etc.... Literally everything that comes around that people say will help your gut work better. I was diagnosis'swith IBS in my early teens, and for the most part fiber took care of the problems except for one day during my period. I could live with it.
Now? It is so much worse. I have literally been ill since Sept 6. I was in teh ER again on Sun morning with nonstop digestive issues (both ways). Some of that was having thrown up medications for 36 hrs and it got better with the medications they gave me. But I have almost no life. To get to the doctor ninety min away for the knee shots, I don't eat or drink ANYTHING except for coke or sprite (which both seem to not cause problems as long as they are not cold and i don't drink much. I can no longer drink water with-o cramping and vomiting. Not EVER. I have torn my esoph three times since Sept, which is nasty and painful and is a huge infection risk. So far I have not gotten infected, but I wn't be that lucky forever.
I think we have tried every medication known to the docs, and they just tell me to take phenergan and not eat things that upset my stomach.
Gee, how long can I live on crackers and plain bread? Cause it is all that doesn't cause an immediate reaction, and it does cause a later one. Bananas, applesauce and rice? NOT good, serious cramping, and nasty to come out. So no BRAT diet.
I take probiotics with digestive enzymes. Had to stop the fiber (the kind that does not ferment, because the fermenting stuff, O. M. G. pain!), and am on rx prevacid and donnatol and levsin (both antispasmodics). The docs, even the specialists, look at the pain medications and marvel that anything comes out of me, but that is ALL they are saying.
How long can this last? We did a six week elimination when this happened three years ago, and NOTHING made any difference. How is it that NOTHING can help this? It isn't like I can take a multivitamin to make up for what I don't get from food. They all have vit d in them and I cannot keep them down.
I am so tired, so worn out, so miserable. I just wish I knew what to do, what else to try. It is scary when every doctor says "Hmmm. I don't know what to even try next. Go see this other doctor." When that 'other doctor' has already told me the same thing and sent me to the one I am talking to. Makes me want to strangle them all with their own intestines about the sixth or seventh time through the circle of docs.
Now? It is so much worse. I have literally been ill since Sept 6. I was in teh ER again on Sun morning with nonstop digestive issues (both ways). Some of that was having thrown up medications for 36 hrs and it got better with the medications they gave me. But I have almost no life. To get to the doctor ninety min away for the knee shots, I don't eat or drink ANYTHING except for coke or sprite (which both seem to not cause problems as long as they are not cold and i don't drink much. I can no longer drink water with-o cramping and vomiting. Not EVER. I have torn my esoph three times since Sept, which is nasty and painful and is a huge infection risk. So far I have not gotten infected, but I wn't be that lucky forever.
I think we have tried every medication known to the docs, and they just tell me to take phenergan and not eat things that upset my stomach.
Gee, how long can I live on crackers and plain bread? Cause it is all that doesn't cause an immediate reaction, and it does cause a later one. Bananas, applesauce and rice? NOT good, serious cramping, and nasty to come out. So no BRAT diet.
I take probiotics with digestive enzymes. Had to stop the fiber (the kind that does not ferment, because the fermenting stuff, O. M. G. pain!), and am on rx prevacid and donnatol and levsin (both antispasmodics). The docs, even the specialists, look at the pain medications and marvel that anything comes out of me, but that is ALL they are saying.
How long can this last? We did a six week elimination when this happened three years ago, and NOTHING made any difference. How is it that NOTHING can help this? It isn't like I can take a multivitamin to make up for what I don't get from food. They all have vit d in them and I cannot keep them down.
I am so tired, so worn out, so miserable. I just wish I knew what to do, what else to try. It is scary when every doctor says "Hmmm. I don't know what to even try next. Go see this other doctor." When that 'other doctor' has already told me the same thing and sent me to the one I am talking to. Makes me want to strangle them all with their own intestines about the sixth or seventh time through the circle of docs.