PonyGirl
Warrior Parent
S saw a Pediatric Specialist on Tuesday. She, The PS, and her OB will pick a date within the next 2 weeks for a C-Section to deliver Julius. They do not want S to go into labor, due to one of the issues with W A S can involve uncontrollable bleeding, and they don't want his head to get squeezed. Also, no circumcision will be performed.
No cord-blood transplant can be done, as his cord-blood already carries the W A S markers.
Julius will be symptom-free for his first 6 months to a year of life. (YAY! Bonus!) This is because he will still be processing S's healthy blood. As he begins to generate blood from his own systems, then we will see what symptoms he will experience of W A S.
He will be watched closely for easy bruising, weight loss, nose bleeds, etc.
S has an appointment. with her OB tomorrow morning. I will take her & difficult child. At this appointment., they will pick out Julius' birthday! (Kinda weird to think about it that way)
In the future, if he needs a bone marrow or stem cell transplant, this will be hopefully matched with either of his parents or his half-sister. I guess we could go on down the line of aunts, uncles, and grandparents. Not sure about that. An unrelated match can be used if no family is a match.
So, that's what we know for now. I'll pop back in tomorrow when I know the date of the blessed event!
Peace
No cord-blood transplant can be done, as his cord-blood already carries the W A S markers.
Julius will be symptom-free for his first 6 months to a year of life. (YAY! Bonus!) This is because he will still be processing S's healthy blood. As he begins to generate blood from his own systems, then we will see what symptoms he will experience of W A S.
He will be watched closely for easy bruising, weight loss, nose bleeds, etc.
S has an appointment. with her OB tomorrow morning. I will take her & difficult child. At this appointment., they will pick out Julius' birthday! (Kinda weird to think about it that way)
In the future, if he needs a bone marrow or stem cell transplant, this will be hopefully matched with either of his parents or his half-sister. I guess we could go on down the line of aunts, uncles, and grandparents. Not sure about that. An unrelated match can be used if no family is a match.
So, that's what we know for now. I'll pop back in tomorrow when I know the date of the blessed event!
Peace
