Sounds like got a lot of those answers were looking for... How do you feel about the evaluation that the therapist did?
Nancy
On one hand, I'm glad even she could see the traits that lead us to believe that he had Asperger's. Although, she's unwilling to diagnose that despite having enough evidence to support that diagnosis. ODD, we considered that in the past as well, so there was no real surprise there. Although, she couldn't account for his violence. She said ODD does not generally include the level of violence he is exhibiting. That really concerns me, especially because of his recent development over the last week or so of saying he's going to kill someone (sometimes me, sometimes himself, sometimes he's just talking about cartoon characters- and he's not malevolent when he's saying it, rather it's like a funny joke to him.)
She did test his cognitive skills, to some extent, but had some contradictory results. He scores as having a cognitive impairment, but his language skills where average to slightly above average. It's like he has the intelligence when he chooses to use it, when he chooses to learn, chooses to show how bright he is... and then when he's fixated, or shut-down, or bored, or anything other than attentive, he 'tests' more like retarded child. It essentially is behavior based, because when he 'listens' he soaks up knowledge like a dry sponge but his tantrums, his inattention, his fixation prevent him (during those times) from learning at all. She really felt in his case, that a majority of his issues are 'behavior' based and not cognitive dysfunction.
I've reached a point where I can see the advantage of finding a facility, especially in the medication department. Without taking him somewhere where they can evaluate, medicate, and 'handle' our son, our only options for medication would be via our neurologist or trying to find a pediatric psychiatrist. I'm really not happy with our current neurologist... he barely spends any time with my son, and always seems surprised (during those few moments) at how SEVERE my little one is. He's not a bad doctor, just not the one for me and my son. And psychiatrist... trying to find one nearby that is taking new patients, and is covered by my insurance... I think monkeys might actually fly out of my bottom before I'd ever find the PhD I need. However, my biggest battle is my husband. He doesn't want to see to bad side of our son. He doesn't want to allow him to be hospitalized, although I am working on that.
I'm really concerned about the medication, too. Not about him taking it, I'm not against it or anything like that. Rather, I am worried because just from Adderall that we gave him for a few months- he reached a point where he wouldn't eat breakfast anymore. He knew that he would get medication, even if he couldn't see it or taste it (the neurologist SWORE it was tasteless, but then again, I'm not very trusting of him regardless) so he refused to eat anything in the mornings. Adding it to his lunch is too late in the day, and I think if we tried to change meals, he would just stop eating another meal in the day. But, even worse, he'd complain at school that he was tired, and hungry- so school started requiring me to bring him in to the front office and feed him in front of them. They basically thought (at first) that I was just not feeding my son on purpose or something, not even trying to get him to sleep at night at a decent hour. They now know differently, and have their own copy of the report, but it's still frustrating to have things he does reflect on me. The entire front office staff knows me, and him, the Vice Principal even bought him special superhero sticker books to placate him during episodes... But- in regard to the breakfast thing, I finally got him to start eating again, but only by abandoning the Adderall.
Basically, he controls the house. It shouldn't be that way, but honestly he does. We pick our battles, and don't even try to balk at the ones we've given up on fighting. I feel like I have NO way to punish him that works in any fashion- other than maybe just taking away toys and TV and that kind of thing (and I do that, but I still don't get a child that listens.)
Sorry this is so long and rambling... I'm happy we have more information, have more suggestions and things to try... but also overwhelmed and downtrodden about the future.