TiredSoul
Warrior Mom since 2007
So..... whenever difficult child rages and turns our household upside down - I go into crisis mode and want something to change immediately. After Tuesday night's rage, I faxed a letter to the psychiatrist saying I wanted to take difficult child off Concerta entirely and just try Intuniv alone. (Background: He just increased his C from 27 to 36 mg - we trialed Intuniv when he was on 27 Concerta and then took him off because we thought it might have caused a couple fights he was in around that time.)
So we had to go in and talk to psychiatrist this morning about this request and he said we can add the Intuniv back and see how he does. What part of take him off stimulants doesn't he understand? I didn't give difficult child his pill this morning because I wanted to see what psychiatrist came up with first - the visit was a nightmare - difficult child jumping all over the place and talking non-stop - oh Lord, now I remember how it is when he is off medication!!! I asked him specifically what we can do when difficult child rages and told him we need training on properly restraining him and he told me he/we would need to work with the counselor (in his office) to come up with a safety plan, etc. Ok waste my time some more will you! I asked him about a neuropsychologist evaluation and he said we don't need to go down that path right now - that is more for mental retardation, autism, major learning disorders, etc. He said difficult child is smart. WTH!?!! Same thing our pediatrician told us. So we walk out of there with Concerta dropped back down to 27 mg and added the Intuniv back on 1 mg for 2 weeks, then up to 2 mg. I once again feel like we are NOT getting anywhere! What the heck should I do?
We cannot live like this. Last night difficult child raged and I felt myself losing control more than I ever have felt before. You know how it is - they make you CRAZY! I am calling a new doctor so I can get something to help me cope. This is nuts.
When difficult child gets like this, it's like there is something in his brain saying I need this certain chemical to be released so that I can be calm again. So he flips out and expends all of this energy and whatever chemical it is is released into his system and then he calms down. This happens almost every other day. WTH is this??
Oh and then after all this - the psychiatrist asks me "so what's his consequence for doing this (raging)"? I told him we haven't gotten there because we are just trying to deal with this happening. He said even if it is bio-chemical, he still needs a consequence so he knows it is not acceptable. To me that is like saying to a blind person- I'm going to give you a consequence so you know it is not acceptable for you to not be able to see.
So we had to go in and talk to psychiatrist this morning about this request and he said we can add the Intuniv back and see how he does. What part of take him off stimulants doesn't he understand? I didn't give difficult child his pill this morning because I wanted to see what psychiatrist came up with first - the visit was a nightmare - difficult child jumping all over the place and talking non-stop - oh Lord, now I remember how it is when he is off medication!!! I asked him specifically what we can do when difficult child rages and told him we need training on properly restraining him and he told me he/we would need to work with the counselor (in his office) to come up with a safety plan, etc. Ok waste my time some more will you! I asked him about a neuropsychologist evaluation and he said we don't need to go down that path right now - that is more for mental retardation, autism, major learning disorders, etc. He said difficult child is smart. WTH!?!! Same thing our pediatrician told us. So we walk out of there with Concerta dropped back down to 27 mg and added the Intuniv back on 1 mg for 2 weeks, then up to 2 mg. I once again feel like we are NOT getting anywhere! What the heck should I do?
We cannot live like this. Last night difficult child raged and I felt myself losing control more than I ever have felt before. You know how it is - they make you CRAZY! I am calling a new doctor so I can get something to help me cope. This is nuts.
When difficult child gets like this, it's like there is something in his brain saying I need this certain chemical to be released so that I can be calm again. So he flips out and expends all of this energy and whatever chemical it is is released into his system and then he calms down. This happens almost every other day. WTH is this??
Oh and then after all this - the psychiatrist asks me "so what's his consequence for doing this (raging)"? I told him we haven't gotten there because we are just trying to deal with this happening. He said even if it is bio-chemical, he still needs a consequence so he knows it is not acceptable. To me that is like saying to a blind person- I'm going to give you a consequence so you know it is not acceptable for you to not be able to see.
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