IEP diagnosis Autism Spectrum Disorders (ASD) of Pddnos & ADHD
- Thread starter lolita
- Start date
Thanks for all the info!
T
TeDo
Guest
DITTO!!!!
Absolutely not! Send the letter requesting that your son "be evaluated for Special Education Services including but not limited to academic, psychological, behavioral, speech-language, and occupational therapy evaluations" ASAP. This starts a Federal timeline, yes 30 days, to do the assessments and put a report together summarizing ALL the findings. THEN go to a meeting AFTER READING THROUGH THEIR REPORT carefully and bring all YOUR information, including your neuropsychologist. Fight for an IEP that addresses the neuropsychologist's recommendations. IF the still balk, get an advocate but I know there has to be someone that won't charge for this. In our state, we have many.
Our SD fought the new diagnosis and fought against the needed supports their own autism specialist recommended. If they say your son doesn't qualify, ask for a FULL explanation IN WRITING. The rest we can advise you on IF you need to push further/harder. Good Luck!!!
Tedo! Thanks! one more question. I just reviewed my son's school reports. THE school district did DO their own evaluation. on April 14,2010 they did a Hearing Screening, Vision, Educational, and Speech and Language.
According to them they found all the screening within normal limits! NOT eligible for Sp Ed services. THEY never did a psychiatric evaluation... KNOWING my son was in a psychiatric Hospital Dec, 2009 for 2 weeks!
NOW I am armed w the complete psychiatric evaluation from MY PRIVATE evaluation. Now what do I do?
According to them they found all the screening within normal limits! NOT eligible for Sp Ed services. THEY never did a psychiatric evaluation... KNOWING my son was in a psychiatric Hospital Dec, 2009 for 2 weeks!
NOW I am armed w the complete psychiatric evaluation from MY PRIVATE evaluation. Now what do I do?
buddy
New Member
You are now requesting a complete educational evaluation. Speech Language (and I am a speech language path so I really do get this one, lol) can be a category on its own. I am not sure why the child study team only had him evaluated for that at that time... and it is true, he probably did not qualify under THAT category.
NO biggie... still write your letter to be evauated for a COMPLETE evaluation... use TeDo's words...
You can state that he has received the medical diagnosis of Pervasive Developmental Disorder (PDD)-not otherwise specified and ADHD and has extreme challenges in school.
Do not emphasize the psychiatric hospital stay in my humble opinion.... work on his needs and skill deficits and how it impacts school. Again, if he has a neurological issue and they focus on behavior, you may not appreciate the kind of help he gets. when she says psychiatric she means educational psychology which is "ability" or IQ testing. NOt the kind of psychiatric work up he got at the hospital for mood disorders, medications etc... very very different.
Others may view this differently but that is my experience.
NO biggie... still write your letter to be evauated for a COMPLETE evaluation... use TeDo's words...
You can state that he has received the medical diagnosis of Pervasive Developmental Disorder (PDD)-not otherwise specified and ADHD and has extreme challenges in school.
Do not emphasize the psychiatric hospital stay in my humble opinion.... work on his needs and skill deficits and how it impacts school. Again, if he has a neurological issue and they focus on behavior, you may not appreciate the kind of help he gets. when she says psychiatric she means educational psychology which is "ability" or IQ testing. NOt the kind of psychiatric work up he got at the hospital for mood disorders, medications etc... very very different.
Others may view this differently but that is my experience.
T
TeDo
Guest
You need to put a request in writing: "Based on new information, I am requesting that *son* be evaluated for Special Education services including, but not limited to, academic, occupational therapy, language processing, expressive speech, behavioral, and psychological evaluations."
Because the old report is about 2 years old, they can redo their assessments. If they refuse to because they "just did them 2 years ago" remind them that things change in two years and you want him re-evaluated. If they still refuse, tell them you want their refusal in writing as well as specific reasoning as to WHY. Then take that to an advocate!!!
buddy
New Member
It is great he had the IQ testing already, but remember it still has to be listed on the educational evaluation. they can though, simply use the results of the IQ test you are providing. They may want to do a different test for IQ too but no matter... the pont is it has to be written in there.
I had to come back and give you guys an UPDATE:
So we went to the Child Study Meeting on Thursday (2hrs!!). I COULD NOT BE ANYMORE HAPPIER!!!!! I did bring my father and a Special Education Advocate with me. Im not sure if that helped or not but it sure didnt hurt anything! The school is now going to do a FULL evaluation to include hear,edu, psychiatric, speech/lang, vision, observation, sociocultural, and Occupational Therapist (OT). They said my sons Needs are Sensory, Social Skills, Pragmatic language, Higher level expressive and Receptive language, Emotional regulation and Mental flexibility. His Strengths: creative & artistic, responds well to alt ways of learning, computer skills/typing, musical and ability to self soothe. The lady in charge of the meeting (School Social Worker)kept trying to point the finger at me! Saying in the past that Ms. Rash has NOT been trying to work with us! Etc. etc..IT freakin ****** me off!!!! Saying that I NEVER signed the medical release form to share info w them..etc..Over the yrs my son has been to a Community Services Health Agency,(they recommend him to go to a psychiatric hospital) Pysch ward/Mental hospital for 2 week inpatient stay, (after 2 wk stay they gave NO diagnosis) a Psychiatrist (just gets medications from him, ONLY diagnosis him w ADHD) a psychologist (she recommended MORE Formal testing) and now recently The Center for Autism Spectrum Disorders Neuropsychological evaluation from Childrens National Medical Center! (Their report is a 15 page diagnosis w ADHD, sensory processing disorder (SPD), & Autism Spectrum Disorders (ASD)!!!!!) FINALLY I had a diagnosis ON PAPER!!! Dont even ask me how much I have spent on all of this over the yrs! Its in the thousands! UGGH! So NOW ARMED w the diagnosis finally I can NOW share with the school something..etc..
What did she want me to share??? I NEVER had anything to SHARE!!!!! And I told her that until NOW! She kept trying to play the blame game. SO I through it back in her face! I said well you know what? It works both ways! THE SCHOOL KNEW in the 3rd grade at school he spelled out in blocks I wish I were dead! (he was upset at school being bullied etc.) Thats when this all started going to see professionals THE SCHOOL KNEW he spent 2 weeks at a psychiatric hospital .And what did the school do??? They tested him for Hearing, Vision, and Speech! NOT PYSCH or anything else! In addition NOT finding him qual for Special Education services! So you better CHECK YOURSELVES! The whole room was QUIET and they were staring at me Like I was a MAD WOMAN! LOL I really dont even give a chit anymore! I am NOT playing anymore and I think they know it!
Having the advocate I think helped too.NOW they are expediting a FULL evaluation and I think suppose to do it in 65 days? BUT they are gonna do it ASAP! Next meeting is March 29th! They will discuss then if he qualifies based on the evaluation results for sp ed services! HOWEVER, The School Social Worker was ALREADY talking about him being qualified under Autism Spectrum Disorders (ASD) for Special Education services and she was discussing IEP!!!!!! I cant believe it! I was SO nervous I would have to fight them for it!!!! Cus well over the yrs I have been to MANY of these meetings with-o an advocate too. Maybe having the new diagnosis and an advocate helped. I dont know But it seems like they are finally going to implement an IEP! Uggh Sorry so long!
End of rant...lol
So we went to the Child Study Meeting on Thursday (2hrs!!). I COULD NOT BE ANYMORE HAPPIER!!!!! I did bring my father and a Special Education Advocate with me. Im not sure if that helped or not but it sure didnt hurt anything! The school is now going to do a FULL evaluation to include hear,edu, psychiatric, speech/lang, vision, observation, sociocultural, and Occupational Therapist (OT). They said my sons Needs are Sensory, Social Skills, Pragmatic language, Higher level expressive and Receptive language, Emotional regulation and Mental flexibility. His Strengths: creative & artistic, responds well to alt ways of learning, computer skills/typing, musical and ability to self soothe. The lady in charge of the meeting (School Social Worker)kept trying to point the finger at me! Saying in the past that Ms. Rash has NOT been trying to work with us! Etc. etc..IT freakin ****** me off!!!! Saying that I NEVER signed the medical release form to share info w them..etc..Over the yrs my son has been to a Community Services Health Agency,(they recommend him to go to a psychiatric hospital) Pysch ward/Mental hospital for 2 week inpatient stay, (after 2 wk stay they gave NO diagnosis) a Psychiatrist (just gets medications from him, ONLY diagnosis him w ADHD) a psychologist (she recommended MORE Formal testing) and now recently The Center for Autism Spectrum Disorders Neuropsychological evaluation from Childrens National Medical Center! (Their report is a 15 page diagnosis w ADHD, sensory processing disorder (SPD), & Autism Spectrum Disorders (ASD)!!!!!) FINALLY I had a diagnosis ON PAPER!!! Dont even ask me how much I have spent on all of this over the yrs! Its in the thousands! UGGH! So NOW ARMED w the diagnosis finally I can NOW share with the school something..etc..
What did she want me to share??? I NEVER had anything to SHARE!!!!! And I told her that until NOW! She kept trying to play the blame game. SO I through it back in her face! I said well you know what? It works both ways! THE SCHOOL KNEW in the 3rd grade at school he spelled out in blocks I wish I were dead! (he was upset at school being bullied etc.) Thats when this all started going to see professionals THE SCHOOL KNEW he spent 2 weeks at a psychiatric hospital .And what did the school do??? They tested him for Hearing, Vision, and Speech! NOT PYSCH or anything else! In addition NOT finding him qual for Special Education services! So you better CHECK YOURSELVES! The whole room was QUIET and they were staring at me Like I was a MAD WOMAN! LOL I really dont even give a chit anymore! I am NOT playing anymore and I think they know it!
Having the advocate I think helped too.NOW they are expediting a FULL evaluation and I think suppose to do it in 65 days? BUT they are gonna do it ASAP! Next meeting is March 29th! They will discuss then if he qualifies based on the evaluation results for sp ed services! HOWEVER, The School Social Worker was ALREADY talking about him being qualified under Autism Spectrum Disorders (ASD) for Special Education services and she was discussing IEP!!!!!! I cant believe it! I was SO nervous I would have to fight them for it!!!! Cus well over the yrs I have been to MANY of these meetings with-o an advocate too. Maybe having the new diagnosis and an advocate helped. I dont know But it seems like they are finally going to implement an IEP! Uggh Sorry so long!
End of rant...lol
buddy
New Member
Well, it SHOULDN'T take long! You are providing them with enough test results to use to qualify him and other than school observations etc... probably nothing much else is needed. NO reason to re-do things with the amount of expertise you are already providing them. they would be in for a huge fight if they tried to dispute that much information anyway and so doing m ore testing, fighting you would all waste district money which at the end of the day they will have to defend to the superintendent and school board.
YOU ROCK! SO SO SO happy you are getting them to move along.
YOU ROCK! SO SO SO happy you are getting them to move along.
Thanks for all the help..oh yeah..and that was about a month ago..I wrote this Thurs..I meant..about a mth ago..I just copied n pasted that from my "other support group" that I pasted it in..lol Also since then my son is now in...Band, Opera, Chess, Karate and NOW Boy Scouts...The boy has a more social life than me now! lol
This talks about his troop...!!! its cool!!!
As far as a support group this past Thursday we took CJ to a Boy Scout meeting for the first time. They did an Orienteering and First Aid Class! I think he really liked it! Even though he was so SHY and didnt say a peep! Friday morning we dropped him off at school and he kept saying he wanted a Compass! Lol
I have all the paperwork to sign him up! One of the brochures says this! While there are other troops and activities in Virginia designed for boys with more severe impairments, the goal of Troop XXX is to provide the scouting experience for in between boys who can function socially and have the capability to take full advantage of all that scouting has to offer, but who might have trouble clicking in a regular scout troop.
The boys in our troop have a range of disabilities, such as Obsessive Compulsive Disorder (OCD), Aspergers and other mild disabilities on the Autism Spectrum. The type of boy that we seek interacts well with other boys, but has impairments that make most scout troops a difficult fit. The Troops goal is to challenge each boy to learn and to grow through the scouting experience into the young man that he can become. Etc..and etc..
This is the perfect fit for CJ!! He just turned 11 so he can join now! I am betting he will love being in this troop! How cool is that! Oh and the Troop Motto is No Obstacles to Adventure! My dad found the troop! By accident! He actually just googled the closest Boy Scout Troop to us! This one just so happened to be in Walking Distance! Its literally in our backyard! We can walk there, so every Thursday it is! Its a perfect fit for him cus they have issues like him.
The 2nd week we went he volunteered to be the speaker!!! Which is a huge improvement for him! I asked him later why he volunteered..He said cus he wants to work on his Public Speaking badge...lol and He was loud and projected his voice too..I can see this is a good club for him..and will continue to give him confidence!
Also tommorrow morning we are going to participate in a clinical research study....Has anyone ever did this before? They give you some compensation for your time..etc..The max amount my child could receive is $100 and the parent will get $30 for completing questionnaires n interviews..ALSO...at a later date they are gonna do a Brain scan and we get to keep the image! Woot Woot! How cool is that? I'm excited bout the brain scan! Cus I know those can cost some $$$$.
As far as a support group this past Thursday we took CJ to a Boy Scout meeting for the first time. They did an Orienteering and First Aid Class! I think he really liked it! Even though he was so SHY and didnt say a peep! Friday morning we dropped him off at school and he kept saying he wanted a Compass! Lol
I have all the paperwork to sign him up! One of the brochures says this! While there are other troops and activities in Virginia designed for boys with more severe impairments, the goal of Troop XXX is to provide the scouting experience for in between boys who can function socially and have the capability to take full advantage of all that scouting has to offer, but who might have trouble clicking in a regular scout troop.
The boys in our troop have a range of disabilities, such as Obsessive Compulsive Disorder (OCD), Aspergers and other mild disabilities on the Autism Spectrum. The type of boy that we seek interacts well with other boys, but has impairments that make most scout troops a difficult fit. The Troops goal is to challenge each boy to learn and to grow through the scouting experience into the young man that he can become. Etc..and etc..
This is the perfect fit for CJ!! He just turned 11 so he can join now! I am betting he will love being in this troop! How cool is that! Oh and the Troop Motto is No Obstacles to Adventure! My dad found the troop! By accident! He actually just googled the closest Boy Scout Troop to us! This one just so happened to be in Walking Distance! Its literally in our backyard! We can walk there, so every Thursday it is! Its a perfect fit for him cus they have issues like him.
The 2nd week we went he volunteered to be the speaker!!! Which is a huge improvement for him! I asked him later why he volunteered..He said cus he wants to work on his Public Speaking badge...lol and He was loud and projected his voice too..I can see this is a good club for him..and will continue to give him confidence!
Also tommorrow morning we are going to participate in a clinical research study....Has anyone ever did this before? They give you some compensation for your time..etc..The max amount my child could receive is $100 and the parent will get $30 for completing questionnaires n interviews..ALSO...at a later date they are gonna do a Brain scan and we get to keep the image! Woot Woot! How cool is that? I'm excited bout the brain scan! Cus I know those can cost some $$$$.
buddy
New Member
Really cool. I am so glad he is having so many happy social successes! We did an ER study once. q got thirty dollars in target cards for allowing them to take cultures from body orifices while we were there for a smashed finger. They were trying to track how bacteria is spread in an ER. He loved all the money!
