wow, compassion. I am so sorry difficult child is struggling so right now. That is not a fun place to be. You sound like your name, such a support to them.
I dont think I ever had to make a shift into thinking that Q will need support in the future...forever. BUT, I have worried that someone would ever be fooled in his more superficial conversations about his interests, that people might not see how severely limited he really is. When I hear stories about people not ever looking in records etc...that makes me scared. I think letting him try to be independent is going to be very very hard for me. Not because I need him with me....but because he is so provocative to others, can insite them into violence, and he could either end up beaten, killed, arrested, etc.... THAT is what scares me.
I do get sad that he wont be able to have typical things in life....his own family etc. But I never thought he would. So not a shift for me, just that pity party that hits sometimes. Truth is he does think about those things sometimes, I think just assuming everyone gets married, has kids etc. Not because he really wants it. Same is true for college, he will say...when I go to college, or when I get my license, etc. That is just not going to happen for him.
I am not big on killing dreams though. Not for kids anyway. Even my former students who were in high school I would always tell them it is wonderful to have your dreams and to go for it. But MY feeling, I may not be right, is that we...all of us.... need a plan B and a plan C. Just in case things change and we still want to be happy picking plans that are things we also like to do.
Life doesn't work like a plan all the time, but it is ok to think about and help them develop some flexibility in thinking.