Many of you are aware my daughter has health issues. She got frustrated and upset a couple of years ago with every doctor just refusing to treat her and refused to go back to them. Not a single one was doing ANYTHING to help her, so I could not blame her. The lack of common sense being used by the docs was astounding.
We asked for ONE thing. To have an EEG done while she was NOT one any medication. That was it. we could not get a single doctor to agree. They would insist that she take antiseizure medications and then 2-3 months later start the scheduling process, so she had 4 months on the medications by the time the EEG was done. So she had no seizures on the EEG. This was used to say she had no seizures and to stop the medications, at which time she clearly had more seizures. After every single pediatric neurology practice in the entire state and 2 in adjoining states did this, she had had enough. She even when through with seeing a neuropsychologist (who did less than nothing) and therapy with three separate therapists who EACH worked with her. EACH psychologist told me to stop wasting money on treatment for convergence/psychosomatic illness and take her to a neurologist becasue it was a neurological issue. The neurologists and (neuropsychologist who did no testing) all insisted it was convergence/psychosomatic.
She is now 21. I thought she was old enough for an 'adult' doctor. I guess not in our town. We have spoken to every adult primary care practice in our town. Either they are not taking new patients, she is not old enough and needs a pediatrician, or she does not fit their 'patient model' - we had to fill out a patient application for 4 of the doctors! This is ridiculous. Almost 20 doctors and not a single one will take her as a patient. Of course the pediatric docs won't see her, she is 21 years old! So on Monday I am going to have to find a doctor in the city 75 miles away.
This isn't something I can put off. A few nights ago she had what I think was a grand mal seizure. She and I had fallen asleep watching a movie on my computer in the bedroom while hubby and thank you watched something on the tv in the living room. I woke up thinking we had a really BAD earthquake. I wake up really fuzzy and it took me a while to figure out what was going on. By the time I could figure out that only the bed was moving and that it was J moving it, it had passed. She does not remember it. I didn't fully put it together until the next day. I have been trying to get her into a doctor since, but even getting a live body on the phone at ANY of the offices has been a real challenge. No excuse, and next time I will be calling 911. I just had absolutely no clue what was going on at the time. But she MUST get in to a doctor and get a referral to a neurologist. I really like the neurologist I am seeing and want her to see him. He seems to have common sense and to use logic, and we need this.
We asked for ONE thing. To have an EEG done while she was NOT one any medication. That was it. we could not get a single doctor to agree. They would insist that she take antiseizure medications and then 2-3 months later start the scheduling process, so she had 4 months on the medications by the time the EEG was done. So she had no seizures on the EEG. This was used to say she had no seizures and to stop the medications, at which time she clearly had more seizures. After every single pediatric neurology practice in the entire state and 2 in adjoining states did this, she had had enough. She even when through with seeing a neuropsychologist (who did less than nothing) and therapy with three separate therapists who EACH worked with her. EACH psychologist told me to stop wasting money on treatment for convergence/psychosomatic illness and take her to a neurologist becasue it was a neurological issue. The neurologists and (neuropsychologist who did no testing) all insisted it was convergence/psychosomatic.
She is now 21. I thought she was old enough for an 'adult' doctor. I guess not in our town. We have spoken to every adult primary care practice in our town. Either they are not taking new patients, she is not old enough and needs a pediatrician, or she does not fit their 'patient model' - we had to fill out a patient application for 4 of the doctors! This is ridiculous. Almost 20 doctors and not a single one will take her as a patient. Of course the pediatric docs won't see her, she is 21 years old! So on Monday I am going to have to find a doctor in the city 75 miles away.
This isn't something I can put off. A few nights ago she had what I think was a grand mal seizure. She and I had fallen asleep watching a movie on my computer in the bedroom while hubby and thank you watched something on the tv in the living room. I woke up thinking we had a really BAD earthquake. I wake up really fuzzy and it took me a while to figure out what was going on. By the time I could figure out that only the bed was moving and that it was J moving it, it had passed. She does not remember it. I didn't fully put it together until the next day. I have been trying to get her into a doctor since, but even getting a live body on the phone at ANY of the offices has been a real challenge. No excuse, and next time I will be calling 911. I just had absolutely no clue what was going on at the time. But she MUST get in to a doctor and get a referral to a neurologist. I really like the neurologist I am seeing and want her to see him. He seems to have common sense and to use logic, and we need this.
